Artigo Acesso aberto Produção Nacional Revisado por pares

Avaliação da qualidade de vida de pacientes com fibrose cística por meio do Cystic Fibrosis Questionnaire

2011; Sociedade Brasileira de Pneumologia e Tisiologia; Volume: 37; Issue: 2 Linguagem: Inglês

10.1590/s1806-37132011000200008

ISSN

1806-3756

Autores

Milena Antonelli Cohen, Maria Ângela Gonçalves de Oliveira Ribeiro, Antônio Fernando Ribeiro, José Dirceu Ribeiro, André Moreno Morcillo,

Tópico(s)

Cystic Fibrosis Research Advances

Resumo

To assess the quality of life (QoL) of patients with cystic fibrosis (CF) followed at a university referral center for CF.A cross-sectional study involving application of the Cystic Fibrosis Questionnaire (CFQ) and Shwachman score in CF patients between April of 2008 and June of 2009.The sample consisted of 75 patients. The mean age was 12.5 ± 5.1 years (range, 6.1-26.4 years). The patients were divided into three groups by age in years: group I (< 12), II (12-14), and III (> 14). The highest and lowest CFQ scores were for the nutrition domain in group III (89.3 ± 16.2) and the social domain in group II (59.5 ± 22.3), respectively. Groups I and III differed significantly regarding the treatment domain (p = 0.001). Regarding Shwachman scores, there were significant differences between patients scoring < 70 and those scoring > 70 in the social (group I; p = 0.045), respiratory (group II; p = 0.053), and digestive (p = 0.042) domains. In group III, severity did not correlate with QoL. In groups I and II, patients with an FEV1 < 80% of predicted did not differ from other patients for any CFQ domain. However, in group III, values for the following domains were significantly lower in patients with an FEV1 < 80%: physical (p = 0.012); body image (p = 0.031); respiratory (p = 0.023), emotional (p = 0.041); and social role (p = 0.024).It is important to assess QoL in CF patients, because it can improve treatment compliance.

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