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Stigma and cystic fibrosis

2010; UNIVERSIDADE DE SÃO PAULO; Volume: 18; Issue: 1 Linguagem: Inglês

10.1590/s0104-11692010000100021

1518-8345

Tainá Maues Peluci Pizzignacco, Débora Falleiros de Mello, Regina Aparecida Garcia de Lima,

Cystic Fibrosis Research Advances

Cystic Fibrosis (CF), also known as Mucoviscidosis, is a chronic disease of autosomal recessive origin and so far incurable. This analysis considers some characteristics of patients and family members that indicate it is a stigmatizing disease. The CF stigma’s impact on the lives of children and adolescents can affect treatment adherence, socialization, family relationships and the formation of their life histories, with direct consequences on their quality of life.