A toolkit for accessible and respectful engagement in research
2014; Taylor & Francis; Volume: 29; Issue: 7 Linguagem: Inglês
10.1080/09687599.2014.902357
ISSN1360-0508
AutoresColleen Anne Kidney, Katherine McDonald,
Tópico(s)Disability Education and Employment
ResumoSocial, scientific, and ethical factors underscore the value of respectfully including people with intellectual/developmental disabilities in research despite significant barriers to their research participation. In pursuit of this goal, we worked with two research advisors with intellectual/developmental disabilities to develop a qualitative study toolkit emphasizing accessibility, flexibility, variety, and responsiveness. The toolkit includes procedures and materials for recruitment, consent, interview locations and questions, breaks, and incentives. We recommend that future research utilizes insights of individuals with intellectual/developmental disabilities in research that impacts their lives, and that researchers systematically improve the use of procedures and toolkits.
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