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Quality of Life in Parents/Caretakers of Children with Cerebral Palsy in Kampong Cham, Cambodia

2011; Oxford University Press; Volume: 58; Issue: 4 Linguagem: Inglês

10.1093/tropej/fmr077

1465-3664

Henrik Ström, M Kreuter, S Rosberg,

Infant Development and Preterm Care

The purpose of this study was to investigate QOL in parents/caretakers of children with cerebral palsy in the province of Kampong Cham, Cambodia. Forty parents/caretakers of children with cerebral palsy aged 1–13 years (F19/M21) participated in this study. The study was carried out using the Comprehensive Quality of life Scale A5 (ComQOL-A5) questionnaire. Results point out three major domains where quality of life is unsatisfactory: health, material well-being and emotional well-being. Of these areas, QOL in the health domain demonstrates the lowest scores. Results support a further commitment in providing comprehensive rehabilitation for parents and their children with CP in Kampong Cham. This study identifies the need for further research on QOL in parents/caretakers of children with CP in Cambodia and the need for development of valid and reliable QOL instruments targeting the developing world.