Artigo Acesso aberto Revisado por pares

The Registry of the International Society for Heart and Lung Transplantation—Introduction to the 2012 Annual Reports: New leadership, Same Vision

2012; Elsevier BV; Volume: 31; Issue: 10 Linguagem: Inglês

10.1016/j.healun.2012.08.003

ISSN

1557-3117

Autores

Marshall I. Hertz,

Tópico(s)

Organ Transplantation Techniques and Outcomes

Resumo

On behalf of the Registry Executive Committee, I am pleased to present the 2012 Annual Reports of the Scientific Registry (the Registry) of the International Society for Heart and Lung Transplantation (ISHLT). The Registry has now collected, analyzed, and reported data regarding more than 150,000 heart, heart-lung, and lung transplants. We are delighted to report a new relationship with the Registro Español de Trasplante Cardíaco, which will allow us, for the first time, to add data to the Registry regarding more than 4,000 heart transplants performed in Spain between May 1984 and March 2012. The addition of the Spanish data, in combination with continued participation of more than 200 other centers worldwide (Appendix), has resulted in the past year being our most active to date, with 6,915 reported transplants (Table 1).Table 1Transplants Reported to the ISHLT RegistryTransplants reportedOrgan(s)From 7/1/10 through 6/30/11Total through 6/30/11Heart3,613104,303Heart-lung634,326Lung3,23941,615Total6,915150,244 Open table in a new tab There are many ways to access the Transplant Registry data. As in past years, all of the data, figures, and tables included in the Registry reports are also available on the ISHLT Web site (www.ishlt.org/registries) in MS PowerPoint format (Microsoft Corp., Redmond, WA). The Web site also contains many additional data slides that are not included in the published reports. In addition, those wishing to view the published reports online may do so at www.cardiosource.com. In addition to the information available in the published Registry reports and slide sets, continent-specific and center-specific data reports can be obtained from the secure section of the ISHLT Web site (www.ishlt.org). Continent-specific reports are available to everyone and allow comparison of continent-specific transplant data with that of all transplants submitted to the Registry. Center-specific reports allow comparison of an individual's center with that of all transplants submitted to the Registry. These reports are available to all actively participating centers, including those submitting data via organ exchange organizations. Because we only want staff members affiliated with each center to access center-specific reports from their own center, center-specific reports require a user name and password, which can be obtained from Kathryn Philibin ([email protected]). ISHLT Young Investigator Awards were presented to two individuals in 2012: Dr Erin Lowery (Loyola University Medical Center) for her project, "Identifying Risk Factors for the Development of PTLD in Patients with Cystic Fibrosis following Lung Transplantation," and Dr Omar Wever-Pinzon (University of Utah) for his project, "Impact of Recipient Age on Differential Causes of Heart Transplant Mortality—is it Time to Personalize Post-transplant Management?" We are also pleased to announce that two prior Young Investigator award recipients were able to present results from their projects at the 2012 Scientific Sessions in Prague, Czech Republic: Dr Jennifer Conway ("Risk Factors for and Risk of Graft Loss after Pediatric Heart Retransplantation: Analysis of the ISHLT Registry") and Dr Jose Nativi ("Post-transplant Survival of Patients in Need of Biventricular and Right-Ventricular Mechanical Bridge to Heart Transplantation: A Comparative Analysis of the ISHLT Transplant Registry"). An additional abstract using ISHLT Registry data, "Late Mortality after Heart Transplantation in Adults with Congenital Heart Disease" (L. J. Burchill, et. al.) was also presented. Finally, 2012 saw publication of two manuscripts based on Registry data in the Journal of Heart and Lung Transplantation.1Nativi J.N. Drakos S.G. Kucheryavaya A.Y. et al.Changing outcomes in patients bridged to heart transplantation with continuous- versus pulsatile-flow ventricular assist devices: an analysis of the registry of the International Society for Heart and Lung Transplantation.J Heart Lung Transplant. 2011; 30: 854-861Abstract Full Text Full Text PDF PubMed Scopus (49) Google Scholar, 2Khush K.K. Kubo J.T. Desai M. Influence of donor and recipient sex mismatch on heart transplant outcomes: analysis of the International Society for Heart and Lung Transplantation Registry.J Heart Lung Transplant. 2012; 31: 459-466Abstract Full Text Full Text PDF PubMed Scopus (103) Google Scholar These awards, presentations, and publications illustrate the ongoing commitment of the Society and the Registry to the promotion of scholarship, and to the development of new clinical investigators. In 2012, Dr Anne Dipchand (University of Toronto) joined the Registry Executive Committee and will serve as a coauthor of this year's pediatric heart transplant manuscript. Next year, she will assume the position of Associate Medical Director for Pediatric Heart Transplantation from Dr Richard Kirk, who has served extremely ably in that capacity since 2008. This will be my final year as Registry Medical Director, a position in which I have served for more than a decade. I am honored that the ISHLT has given me the opportunity to lead a team of talented statisticians, analysts, physicians, and surgeons during my tenure, during which we have seen the addition of more than 80,000 new heart and lung transplant records to the Registry. Now, I will join the ranks of former Registry directors—including Dr Michael Kaye, who served from 1983 to 1993, and Dr. Jeffrey Hosenpud, who served from 1994 to 2001. With an eye to the future, the ISHLT Board has wisely appointed Dr Josef Stehlik (University of Utah) as the fourth Registry Medical Director. Dr Stehlik's talent, energy, and commitment will ensure that the Registry remains the world's most comprehensive record of heart and lung transplant activity, practices, and outcomes; and a resource for ongoing research regarding these continually evolving areas of practice. We again express gratitude to the many heart and lung transplant surgeons and physicians, clinical coordinators, data coordinators, organ exchange organizations, and other reporting agencies throughout the world, whose timely and accurate submission of data has enabled the Registry to thrive during the past 29 years. We also appreciate the ongoing commitment by the Society and its members to the continued vitality and growth of this valuable resource. We also wish to acknowledge the outstanding contributions of the following individuals at TII Informatics Group, without whose assistance the Registry and its Annual Reports would not be possible: Frank Gilg, Susan Groff, Matthew Harrison, Kathryn Philibin, Robert Todd, and Jaime Williamson. All relevant disclosures for the Registry Director, Executive Committee Members and authors are on file with the ISHLT and can be made available for review by contacting the Executive Director of the ISHLT. Tabled 1Thoracic transplant centers reporting data to the ISHLT Transplant Registry for transplants performed between January 1, 2010 and June 30, 2011CountryCenterTransplants reported to ISHLT (1/1/10 to 6/30/11)ArgentinaFundacion FavaloroxHospital ItalianoxAustraliaaData provided via Australia and New Zealand Cardiothoracic Transplant Registry (ANZCOTR).St. VincentxRoyal ChildrenxThe Prince Charles HospitalxThe Alfred HospitalxRoyal Perth HospitalxAustriabData provided via Eurotransplant (ET).Allgemeines Krankenhaus WienxUniversitätsklinik InnsbruckxLandeskrankenhaus GrazxBelgiumbData provided via Eurotransplant (ET).Hôpital Erasme BruxellesxUniversitair Ziekenhuis AntwerpenxOnze Lieve Vrouw Ziekenhuis AalstxUniversitair Ziekenhuis GentxCentre Hospitalier Universitaire LiègexCliniques Universitaires, Université Catholique de LouvainxUZ Gasthuisberg LeuvenxBrazilHeart Institute—Univ Sao Paulo Hospital das ClinicasxHospital de MessejanaxCzech RepublicUniversity Hospital MotolxCanadaRoyal Victoria HospitalxThe Toronto General HospitalxHospital Notre-DamexQuebec Heart Institute—Laval HospitalxOttawa Heart InstitutexUniversity of Alberta Hospitals/Walter C. Mackenzie Health SciencesxThe Hospital For Sick ChildrenxChileInstituto Nacional del ToraxxColombiaClinica CardiovascularxFundacion Valle Del LilixFundacion Cardioinfantil—Instituto de CardiologiaxFundacion Cardiovascular de ColombiaxFundacion Clinica ShaioxCroatiabData provided via Eurotransplant (ET).University Clinical Hospital ZagrebxUniversity Hospital DubravaxDenmarkcData provided via Scandiatransplant.Skejby University HospitalxRigshospitalet, National University HospitalxFinlandcData provided via Scandiatransplant.Helsinki University Central HospitalxChildren's Hospital, University of HelsinkixFrancedData provided via L'Agence de la Biomédicine.Marseille Sainte Marguerite (APM) (A)—CHIRURGIE THORACIQUExMarseille Timone adultes (APM) (A)—CHIRURGIE CARDIAQUExMarseille Timone enfants (APM) (A+P)—CHIRURGIE CARDIO-VASCULAIRExCaen (A)—CHIRURGIE CARDIAQUExDijon (A)—CHIRURGIE CARDIAQUExToulouse (A)—CHIRURGIE THORACIQUExToulouse (A)—CHIRURGIE CARDIO-VASCULAIRExBordeaux (A+P)—UNITE DE TRANSPLANTATION CARDIAQUExBordeaux (A+P)—CHIRURGIE THORACIQUExMontpellier (A)—UNITE DE TRANSPL. CARDIO-THORACIQUExRennes (A)—CENTRE CARDIO-PNEUMOLOGIQUExTours (A+P)—CHIRURGIE CARDIAQUExGrenoble (A)—CHIRURGIE CARDIAQUExGrenoble (A)—PNEUMOLOGIExNantes (A+P)—CHIRURGIE CARDIO-VASCULAIRExNancy (A+P)—CHIRURGIE CARDIO-PULMONAIRExLille (A+P)—CHIRURGIE CARDIO-VASCULAIRExClermont-Ferrand (A)—CHIRURGIE CARDIAQUExStrasbourg (A)—CHIRURGIE THORACIQUExStrasbourg (A)—CHIRURGIE CARDIO-PULMONAIRExLyon (A+P)—POLE DE TRANSPLANTATION PULMONAIRExLyon I (HCL) (A+P)—Pole de Transplantation CardiaquexLyon II (HCL) (A)—POLE DE TRANSPLANTATION CARDIAQUExParis Pitié-Salpêtrière (AP-HP) (A+P)—CHIRURGIE CARDIO-VASCULAIRExParis Necker Enfants Malades (AP-HP) (A+P)—CARDIOLOGIE PEDIATRIQUExClichy Beaujon (AP-HP) (A)—PNEUMOLOGIE B ET TRANSPLANTATION PULMONAIRExParis Bichat (AP-HP) (A)—CHIRURGIE CARDIO-VASCULAIRExParis Georges Pompidou (AP-HP) (A)—TRANSPLANTATION CARDIAQUExParis Georges Pompidou (AP-HP) (A+P)—TRANSPL. PULM. ET CARDIO-PULM.xRouen (A+P)—CHIR. THORACIQUE ET CARDIO-VASCULAIRExLimoges (A)—CHIRURGIE CARDIAQUExSuresnes Foch (A)—CHIRURGIE THORACIQUExSuresnes Foch (A)—CHIRURGIE CARDIO-VASCULAIRExLe Plessis-Robinson Marie-Lannelongue (A+P)—CHIRURGIE CARDIAQUExLe Plessis-Robinson Marie-Lannelongue (A+P)—CHIRURGIE THORACIQUE CARDIO-VASCULAIRExCréteil Henri Mondor (AP-HP) (A)—Chirurgie Cardio-VasculairexGermanybData provided via Eurotransplant (ET).Universität des Saarlandes Homburg/SaarxHerzzentrum Dresden GmbHxDeutsches Herzzentrum BerlinxUniversitätsklinik KölnxUniversität Leipzig—HerzzentrumxKerckhoff Klinik, Bad NauheimxKlinikum der Universität RegensburgxHerzzentrum Nordrhein-Westfalen Bad OeynhausenxUniversitätsklinikum EssenxJohannes Gutenberg Universität MainzxHeinrich-Heine-Universität DüsseldorfxUniversitätsklinikum MünsterxRuprecht-Karls-Universität HeidelbergxMedizinische Hochschule HannoverxUniversitätsklinikum GöttingenxUniversitätsklinikum AachenxKlinikum der Justus-Liebig-Universität GiessenxUniversitätsklinikum Schleswig-Holstein KielxJohann Wolfgang Goethe Universität Frankfurt/MainxFriedrich Schiller Universität JenaxFriedrich Alexander Universität ErlangenxUniversitätsklinikum WürzburgxLudwig Maximilians Universität MünchenxUniversitätsklinikum HamburgxKlinikum der Albert-Ludwigs-Universität Freiburg im BreisgauxIrelandeData provided via United Kingdom Transplant Support Service Authority (UKTSSA).Cardiac Surgery and Transplantation Research CenterxMater HospitalxIsraelRabin Medical Center (Belinson Campus)xSheba Medical CenterxItalyNiguarda CA Granda HospitalxPoliclinico S. Orsola—Universitadegli StudixJapanTohoku University HospitalxKyoto University HospitalxSaitama Medical School HospitalxKoreaYongdong Severance HospitalxNetherlandsbData provided via Eurotransplant (ET).Universitair Medisch Centrum UtrechtxErasmus Medisch Centrum RotterdamxUniversitair Medisch Centrum GroningenxNew ZealandAuckland City HospitalxNorwaycData provided via Scandiatransplant.Rikshospitalet—National Hospital of NorwayxSloveniabData provided via Eurotransplant (ET).University Medical Center LjubljanaxSouth AfricaMilpark HospitalxSpainComplejo Hospitalario Universitario Juan CanalejofLung data provided via Organización Nacional de Trasplantes (ONT).,gHeart data provided directly to ISHLT Registry.xHospital Universitario Marques de ValdecillafLung data provided via Organización Nacional de Trasplantes (ONT).,hHeart data provided via Registro Español de Trasplante Cardíaco.xHospital de Bellvitge, BarcelonahHeart data provided via Registro Español de Trasplante Cardíaco.xHospital Virgen Del Rocio, SevillahHeart data provided via Registro Español de Trasplante Cardíaco.xHospital Santa Creu I Sant Pau, BarcelonahHeart data provided via Registro Español de Trasplante Cardíaco.xHospital Universitario 12 de OctubrefLung data provided via Organización Nacional de Trasplantes (ONT).,hHeart data provided via Registro Español de Trasplante Cardíaco.xHospital Universitario Reina SofiafLung data provided via Organización Nacional de Trasplantes (ONT).,hHeart data provided via Registro Español de Trasplante Cardíaco.xHospital Gregorio Marañón, MadridhHeart data provided via Registro Español de Trasplante Cardíaco.xHospital La Paz. Madrid, NiñoshHeart data provided via Registro Español de Trasplante Cardíaco.xHospital Universitario Puerta de HierrofLung data provided via Organización Nacional de Trasplantes (ONT).xHospital Universitari I Politècnic La Fe, ValenciafLung data provided via Organización Nacional de Trasplantes (ONT).,hHeart data provided via Registro Español de Trasplante Cardíaco.xHospital Clinic I Provincial, BarcelonahHeart data provided via Registro Español de Trasplante Cardíaco.xHospital UniversitarioVall D'HebronfLung data provided via Organización Nacional de Trasplantes (ONT).,hHeart data provided via Registro Español de Trasplante Cardíaco.xHospital Central de AsturiasgHeart data provided directly to ISHLT Registry.xHospital Virgen de La Arrixaca, MurciahHeart data provided via Registro Español de Trasplante Cardíaco.xHospital Miguel Servet, ZaragozahHeart data provided via Registro Español de Trasplante Cardíaco.xHospital Clínico, ValladolidhHeart data provided via Registro Español de Trasplante Cardíaco.xSwedencData provided via Scandiatransplant.Karolinska University Hospital, SolnaxSahlgrenska University HospitalxUniversity Hospital of LundxSwitzerlandUniversity Hospital ZurichxUnited KingdomeData provided via United Kingdom Transplant Support Service Authority (UKTSSA).Great Ormand Street Hospital for ChildrenxUniversity of Glasgow/Glasgow Royal InfirmaryxThe Freeman HospitalxHarefield HospitalxWythenshawe HospitalxQueen Elizabeth HospitalxPapworth HospitalxUnited StatesiData provided via United Network for Organ Sharing (UNOS).University of Alabama Hospital, Birmingham, ALxBaptist Medical Center, Little Rock, ARxArkansas Children's Hospital, Little Rock, ARxMayo Clinic Hospital, Phoenix, AZxSt. Joseph's Hospital and Medical Center, Phoenix, AZxUniversity Medical Center, University of Arizona, Tucson, AZxChildren's Hospital Los Angeles, Los Angeles, CAxCedars-Sinai Medical Center, Los Angeles, CAxLoma Linda University Medical Center, Loma Linda, CAxLucile Salter Packard Children's Hospital, Palo Alto, CAxCalifornia Pacific Medical Center, San Francisco, CAxUCSD Medical Center, San Diego, CAxUCSF Medical Center, San Francisco, CAxSutter Memorial Hospital, Sacramento, CAxSharp Memorial Hospital, San Diego, CAxStanford University Medical Center, Stanford, CAxUCLA Medical Center, Los Angeles, CAxKeck Hospital of USC, Los Angeles, CAxChildren's Hospital Colorado, Aurora, COxUniversity of Colorado Hospital/HSC, Aurora, COxHartford Hospital, Hartford, CTxYale New Haven Hospital, New Haven, CTxWashington Hospital Center, Washington, DCxAlfred I duPont Hospital for Children, Wilmington, DExAll Children's Hospital, St. Petersburg, FLxMemorial Regional/Joe DiMaggio Children's Hospital, Hollywood, FLxJackson Memorial Hospital, Miami, FLxMayo Clinic Florida, Jacksonville, FLxTampa General Hospital, Tampa, FLxShands Hospital at University of FL, Gainesville, FLxChildren's Healthcare of Atlanta, Atlanta, GAxEmory University Hospital, Atlanta, GAxSt. Joseph's Hospital of Atlanta, Atlanta, GAxUniversity of Iowa Hospital and Clinics, Iowa City, IAxAdvocate Christ Medical Center, Oak Lawn, ILxChildren's Memorial Hospital, Chicago, ILxLoyola University Medical Center, Maywood, ILxNorthwestern Memorial Hospital, Chicago, ILxRush University Medical Center, Chicago, ILxUniversity of Chicago Medical Center, Chicago, ILxIndiana University Health, Indianapolis, INxLutheran Hospital of Ft Wayne, Ft Wayne, INxSt Vincent Hospital and Health Care Center, Indianapolis, INxJewish Hospital, Louisville, KYxKosair Children's Hospital, Louisville, KYxUniversity of Kentucky Medical Center, Lexington, KYxOchsner Foundation Hospital, New Orleans, LAxTulane Medical Center, New Orleans, LAxChildren's Hospital Boston, Boston, MAxMassachusetts General Hospital, Boston, MAxTufts Medical Center, Boston, MAxBrigham and Women's Hospital, Boston, MAxJohns Hopkins Hospital, Baltimore, MDxUniversity of Maryland Medical System, Baltimore, MDxChildren's Hospital of Michigan, Detroit, MIxHenry Ford Hospital, Detroit, MIxSpeCenterum Health, Grand Rapids, MIxUniversity of Michigan Medical Center, Ann Arbor, MIxAbbott Northwestern Hospital, Minneapolis, MNxSt. Mary's Hospital (Mayo Clinic), Rochester, MNxUniversity of Minnesota Medical Center, Minneapolis, MNxBarnes-Jewish Hospital, St. Louis, MOxCardinal Glennon Children's Hospital, St. Louis, MOxSt. Louis Children's Hospital, St Louis, MOxSt. Luke's Hospital of Kansas City, Kansas City, MOxUniversity of Mississippi Medical Center, Jackson, MSxNorth Carolina Baptist Hospital, Winston Salem, NCxCarolinas Medical Center, Charlotte, NCxDuke University Hospital, Durham, NCxUniversity of North Carolina Hospitals, Chapel Hill, NCxThe Nebraska Medical Center, Omaha, NExNewark Beth Israel Medical Center, Newark, NJxRobert Wood Johnson University Hospital, New Brunswick, NJxNew York-Presbyterian/Columbia, New York, NYxStrong Memorial Hospital, Rochester, NYxMontefiore Medical Center, Bronx, NYxMount Sinai Medical Center, New York, NYxWestchester Medical Center, Valhalla, NYxCleveland Clinic Foundation, Cleveland, OHxNationwide Children's Hospital, Columbus, OHxChildren's Hospital Medical Center, Cincinnati, OHxOhio State University Medical Center, Columbus, OHxUniversity Hospital of Cleveland, Cleveland, OHxIntegris Baptist Medical Center, Oklahoma City, OKxProvidence Portland Medical Center, Portland, ORxOregon Health and Science University, Portland, ORxAllegheny General Hospital, Pittsburgh, PAxChildren's Hospital of Pittsburgh of UPMC, Pittsburgh, PAxChildren's Hospital of Philadelphia, Philadelphia, PAxPenn State Milton S Hershey Medical Center, Hershey, PAxHahnemann University Hospital, Philadelphia, PAxUniversity of Pittsburgh Medical Center, Pittsburgh, PAxThomas Jefferson University Hospital, Philadelphia, PAxTemple University Hospital, Philadelphia, PAxThe Hospital of the University of PA, Philadelphia, PAxCardiovascular Center of Puerto Rico, San Juan, PRxMedical University of South Carolina, Charleston, SCxBaptist Memorial Hospital, Memphis, TNxSt. Thomas Hospital, Nashville, TNxVanderbilt University Medical Center, Nashville, TNxUniversity Hospital, San Antonio, TXxChildren's Medical Center of Dallas, Dallas, TXxSeton Medical Center, Austin, TXxMedical City Dallas Hospital, Dallas, TXxSt Luke's Episcopal Hospital, Houston, TXxMethodist Specialty and Transplant Hospital, San Antonio, TXxUniversity of Texas Medical Branch, Galveston, TXxThe Methodist Hospital, Houston, TXxChristus Santa Rosa Hospital Medical Center, San Antonio, TXxUniversity Hospital—St. Paul, Dallas, TXxScott and White Memorial Hospital, Temple, TXxTexas Children's Hospital, Houston, TXxBaylor University Medical Center, Dallas, TXxIntermountain Medical Center, Murray, UTxUniversity of Utah Medical Center, Salt Lake City, UTxPrimary Children's Medical Center, Salt Lake City, UTxInova Fairfax Hospital, Falls Church, VAxMCV Hospitals, Richmond, VAxMcGuire VA Medical Center, Richmond, VAxSentara Norfolk General Hospital, Norfolk, VAxUniversity of Virginia HSC, Charlottesville, VAxSeattle Children's Hospital, Seattle, WAxSacred Heart Medical Center, Spokane, WAxUniversity of Washington Medical Center, Seattle, WAxChildren's Hospital of Wisconsin, Milwaukee, WIxFroedtert Memorial Lutheran Hospital, Milwaukee, WIxAurora St. Luke's Medical Center, Milwaukee, WIxUniversity of Wisconsin Hospital and Clinics, Madison, WIxa Data provided via Australia and New Zealand Cardiothoracic Transplant Registry (ANZCOTR).b Data provided via Eurotransplant (ET).c Data provided via Scandiatransplant.d Data provided via L'Agence de la Biomédicine.e Data provided via United Kingdom Transplant Support Service Authority (UKTSSA).f Lung data provided via Organización Nacional de Trasplantes (ONT).g Heart data provided directly to ISHLT Registry.h Heart data provided via Registro Español de Trasplante Cardíaco.i Data provided via United Network for Organ Sharing (UNOS). Open table in a new tab ErrataThe Journal of Heart and Lung TransplantationVol. 32Issue 2PreviewThe Registry of the International Society for Heart and Lung Transplantation—Introduction to the 2012 Annual Reports: New leadership, Same Vision. J Heart Lung Transplant 2012 Oct;31(10): 1045-51. Full-Text PDF

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