Revisão Acesso aberto Revisado por pares

Public Willingness to Participate in and Public Opinions About Genetic Variation Research: A Review of the Literature

2006; American Public Health Association; Volume: 96; Issue: 11 Linguagem: Inglês

10.2105/ajph.2005.069286

ISSN

1541-0048

Autores

Rene Sterling, Gail E. Henderson, Giselle Corbie‐Smith,

Tópico(s)

Climate Change Communication and Perception

Resumo

Scientists are turning to genetic variation research in hopes of addressing persistent racial/ethnic disparities in health. Despite ongoing controversy, the advancement of genetic variation research is likely to produce new knowledge and technologies that will substantially change the ways in which we understand and value health. They also may affect the ways in which individuals and groups organize socially, politically, and economically. Addressing concerns that may exist in different communities is vital to the scientific and ethical advancement of genetic variation research. We review empirical studies of public willingness to participate in and opinions about genetic research with particular attention to differences in consent and opinion by racial/ethnic group membership.

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