Genetic nondiscrimination legislation: a critical prerequisite for pharmacogenomics data sharing
2007; Future Medicine; Volume: 8; Issue: 5 Linguagem: Inglês
10.2217/14622416.8.5.519
ISSN1744-8042
AutoresRuss B. Altman, Neal L. Benowitz, David Gurwitz, Jeantine E. Lunshof, Mary V. Relling, Jatinder K. Lamba, Eric D. Wieben, Sean D. Mooney, Kathleen M. Giacomini, Scott T. Weiss, Julie A. Johnson, Howard L. McLeod, David A. Flockhart, Richard M. Weinshilboum, Alan R. Shuldiner, Dan M. Roden, Ronald M. Krauss, Mark J. Ratain,
Tópico(s)Pharmaceutical Economics and Policy
ResumoPharmacogenomicsVol. 8, No. 5 CommentaryGenetic nondiscrimination legislation: a critical prerequisite for pharmacogenomics data sharingRuss B Altman, Neal Benowitz, David Gurwitz, Jeantine Lunshof, Mary Relling, Jatinder Lamba, Eric Wieben, Sean Mooney, Kathleen Giacomini, Scott Weiss, Julie A Johnson, Howard McLeod, David Flockhart, Richard Weinshilboum, Alan R Shuldiner, Dan Roden, Ronald M Krauss & Mark RatainRuss B Altman† Author for correspondenceStanford University, Department of Genetics and Bioengineering, Clark S172, Stanford, CA 94305-5444, USA. , Neal BenowitzUniversity of California, San Francisco, David GurwitzTel-Aviv University, Jeantine LunshofVU University Medical Center, Mary RellingSt Jude Children's Research Hospital, Jatinder LambaSt Jude Children's Research Hospital, Eric WiebenMayo Clinic, Sean MooneyIndiana University School of Medicine, Kathleen GiacominiUniversity of California, San Francisco, Scott WeissHarvard Medical School, Julie A JohnsonUniversity of Florida, Howard McLeodUniversity of North Carolina, David FlockhartIndiana University School of Medicine, Richard WeinshilboumMayo Clinic, Alan R ShuldinerUniversity of Maryland, Dan RodenVanderbilt School of Medicine, Ronald M KraussChildren's Hospital Oakland Research Institute & Mark RatainUniversity of ChicagoPublished Online:27 Apr 2007https://doi.org/10.2217/14622416.8.5.519AboutSectionsView ArticleView Full TextPDF/EPUB ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareShare onFacebookTwitterLinkedInRedditEmail View article"Genetic nondiscrimination legislation: a critical prerequisite for pharmacogenomics data sharing." , 8(5), p. 519Bibliography1 GINA, aGAIN. Nat Genet.39,133 (2007).Crossref, Medline, Google Scholar2 Kohane IS, Altman RB: Health-information altruists – a potentially critical resource. N. Engl. J. Med.353,2074–2077 (2005).Crossref, Medline, CAS, Google Scholar3 Knoppers BM, Joly Y, Simard J, Durocher F: The emergence of an ethical duty to disclose genetic research results: international perspectives. Eur. J. Hum. Genet.14,1170–1178 (2006).Crossref, Medline, Google Scholar4 Lin Z, Owen AB, Altman RB: Genetics. Genomic research and human subject privacy. Science305,183 (2004).Crossref, Medline, CAS, Google Scholar5 Lunshof JE: Personalized medicine: how much can we afford? A bioethics perspective. Personalized Med.2,43–47 (2005).Link, Google Scholar6 Budnitz DS, Pollock DA, Weidenbach KN, Mendelsohn AB, Schroeder TJ, Annest JL: National surveillance of emergency department visits for outpatient adverse drug events. JAMA296,1858–1866 (2006).Crossref, Medline, CAS, Google Scholar7 Pirmohamed M, James S, Meakin S et al.: Adverse drug reactions as cause of admission to hospital: prospective analysis of 18,820 patients. Br. Med. J.329,15–19 (2004).Crossref, Medline, Google Scholar8 Collins FS, Green ED, Guttmacher AE, Guyer MS: US National Human Genome Research Institute: a vision for the future of genomics research. Nature422,835–847 (2003).Crossref, Medline, CAS, Google Scholar9 Gurwitz D, Lunshof JE, Altman RB: A call for the creation of personalized medicine databases. Nat. Rev. Drug Discov.5,23–26 (2006).Crossref, Medline, CAS, Google Scholar10 Service RF: Gene sequencing. The race for the $1000 genome. Science311,1544–1546 (2006).Crossref, Medline, CAS, Google Scholar11 Sladek R, Rocheleau G, Rung J et al.: A genome-wide association study identifies novel risk loci for Type 2 diabetes. Nature445,881–885 (2007).Crossref, Medline, CAS, Google ScholarFiguresReferencesRelatedDetailsCited ByPharmacogenomics-based individualized treatment of hypertension in preterm infants: A case report and review of the literature26 October 2023 | World Journal of Clinical Cases, Vol. 11, No. 30Good health checks according to the general public; expectations and criteria: a focus group study22 June 2018 | BMC Medical Ethics, Vol. 19, No. 1Whole genome sequencing as a diagnostic tool: Participant-centered consentEthics, Medicine and Public Health, Vol. 2, No. 3Investigations and thoughts of the ethics in genetic discriminationJournal of Medical Colleges of PLA, Vol. 28, No. 1How Will GINA Influence Participation in Pharmacogenomics Research and Clinical Testing?Clinical Pharmacology & Therapeutics, Vol. 86, No. 5Personal genomics services: whose genomes?4 March 2009 | European Journal of Human Genetics, Vol. 17, No. 7What are the stakes? Genetic nondiscrimination legislation and personal genomicsBarbara Prainsack9 September 2008 | Personalized Medicine, Vol. 5, No. 5Eighth Asian Bioethics ConferenceSoraj Hongladarom22 August 2007 | Personalized Medicine, Vol. 4, No. 3 Vol. 8, No. 5 STAY CONNECTED Metrics Downloaded 230 times History Published online 27 April 2007 Published in print May 2007 Information© Future Medicine LtdPDF download
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