Banking on the Human Genome Project*
2007; Wiley; Volume: 44; Issue: 2 Linguagem: Inglês
10.1111/j.1755-618x.2007.tb01133.x
ISSN1755-618X
Autores Tópico(s)scientometrics and bibliometrics research
ResumoCanadian Review of Sociology/Revue canadienne de sociologieVolume 44, Issue 2 p. 175-200 Banking on the Human Genome Project* Matt Ratto, Matt Ratto Royal Netherlands Academy of Arts and Sciences, AmsterdamSearch for more papers by this authorAnne Beaulieu, Anne Beaulieu Royal Netherlands Academy of Arts and Sciences, AmsterdamSearch for more papers by this author Matt Ratto, Matt Ratto Royal Netherlands Academy of Arts and Sciences, AmsterdamSearch for more papers by this authorAnne Beaulieu, Anne Beaulieu Royal Netherlands Academy of Arts and Sciences, AmsterdamSearch for more papers by this author First published: May 2007 https://doi.org/10.1111/j.1755-618X.2007.tb01133.xCitations: 3 † *This article is based on work done in the project "Metaphors of databases as early indicators of integration and support in scientific research networks,"#458-02-005, funded by the program Network of Networks of the Netherlands Organisation for Scientific Research (NOW, http:www.virtualknowledgestudio.nl). The authors would like to thank the anonymous reviewers, the editors of this special issue, their colleagues at the VKS and Iina Hellsten as member of the research team on this project. This manuscript was submitted in January 2006, revised in September 2006 and accepted in December 2006. Contact: [email protected]; [email protected]. AboutPDF ToolsRequest permissionExport citationAdd to favoritesTrack citation ShareShare Give accessShare full text accessShare full-text accessPlease review our Terms and Conditions of Use and check box below to share full-text version of article.I have read and accept the Wiley Online Library Terms and Conditions of UseShareable LinkUse the link below to share a full-text version of this article with your friends and colleagues. Learn more.Copy URL Share a linkShare onEmailFacebookTwitterLinkedInRedditWechat References Barbour, V. 2003. " UK Biobank: A project in search of a protocol? Lancet, No. 361, pp. 1734–38. Beaulieu, A. 2004. "From brainbank to database: The informational turn in the study of the brain. Studies in History and Philosophy of Science, Part C: Studies in History and Philosophy of Biological and Biomedical Sciences, Vol. 35, No. 2, pp. 367–90. Black, M. 1993. " More about metaphor." In Metaphor and thought. 2nd ed. A. Ortony (ed.). Cambridge , England New York , N.Y. : Cambridge University Press, pp. 19–41. Bono, J. 1990. " Science, discourse, and literature: The role/rule of metaphor in science." In Literature and Science: Theory and Practice. S. Peterfreund (ed.). Boston : Northeastern University Press, pp. 59–89. Boyle, J. 1996. Shamans, Software, and Spleens: Law and the Construction of the Information Society. Cambridge : Harvard University Press. Brown, T.L. 2003. Making Truth: Metaphor in Science. Urbana 111. : University of Illinois Press. Bucchi, M. 1998. Science and the Media: Alternative Routes in Scientific Communication. London : Routledge. CORDIS. 2002. " European drive for post-genomic research, European commission awards 39.4 million to three large-scale projects." Press release 18 March 2002. Online at http:ec.europa.euresearchpress2002prl803en.html. Einsiedel, E.F. 2003. Whose Genes, Whose Safe, How Safe? Publics' and Professionals' Views of Biobanks. Ottawa : The Canadian Biotechnology Advisory Committee. Fujimura, J., and M. Fortun. 1996. " Constructing knowledge across social worlds: The case of DNA sequence databases in molecular biology." In In Naked Science: Anthropological Inquiry into Boundaries, Power and Knowledge. L. Nader (ed.). New York : Routledge, pp. 160–73. Genomeutwin 2001. " Genome-wide analyzes of European twin and population cohorts to identify genes predisposing to common diseases." QLRT-2001-01254. . Gere, C. and C. Gere. 2004. "The brain in a vat. Studies in History and Philosophy of Science, Part C: Studies in History and Philosophy of Biological and Biomedical Sciences, Vol. 35, No. 2, pp. iii–iv. Hansson, M. 2001. " Introduction." In The Use of Human Biobanks: Ethical, Social, Economical, and Legal Aspects. M. Hansson (ed.). Uppsala : Uppsala University. Haraway, D. 1991. Simians, Cyborgs, and Women: The Reinvention of Nature. New York : Routledge. Harris, J.R., G. Willemsen, T. Aitlahti, C. Petrini, E. Alun, K. Silander et al. 2003. "Ethical issues and genomeutwin. Twin Research, Vol. 6, No. 5, pp. 455–63. Hellsten, I. 2003. "The case of 'frankenfood' on the web. Journal of Computer Mediated Communication, Vol. 8, No. 4. Hellsten, I. 2005. "From sequencing to annotating: Extending the metaphor of the book of life from genetics to genomics. New Genetics and Society, Vol. 24, No. 3, pp. 283–97. Hesse, M.B. 1966. Models and Analogies in Science. Notre Dame , Ind. : University of Notre Dame Press. HGC. 2002. Inside Information: Balancing Interests in the Use of Personal Genetic Data, a Summary Report by the Human Genetics Commission. London : Human Genetics Commission. Hoeyer, K. 2002. "Conflicting notions of personhood in genetic research. Anthropology Today, Vol. 18, No. 5, pp. 9–13. Hoeyer, K. 2004. " Ambiguous gifts. Public anxiety, informed consent and biobanks." In Genetic Databases. Socio-Ethical Issues in the Collection and Use of DNA. R. Tutton and O. Corrigan (eds.). London : Routledge, pp. 97–113. Hubbard, R. and E. Wald. 1993. Exploring the Gene Myth: How Genetic Information Is Produced and Manipulated by Scientists, Physicians, Employers, Insurance Companies, Educators and Law Enforcers. Boston : Beacon Press. Kay, L.E. 2000. Who Wrote the Book of Life? A History of the Genetic Code. Stanford : Stanford University Press. Kopytoff, I. 1986. " The cultural biography of things: Commoditization as process." In The Social Life of Things. Commodities in Cultural Perspective. A. Appadurai (ed.). Cambridge : Cambridge University Press, pp. 64–91. Lakoff, G. 1993. " The contemporary theory of metaphor." In Metaphor and Thought. A. Ortony (ed.). Cambridge : Cambridge University Press, pp. 202–51. Lakoff, G. and M. Johnson. 1980. Metaphors We Live By. Chicago : Chicago University Press. Leatherdale, W.H. 1974. The Role of Analogy, Model, and Metaphor in Science. Amsterdam and New York : North-Holland Pub. Co. and American Elsevier Pub. Co. Leeming, W. 2007. "On the relevance of the 'genetics-based' approach to medicine for sociological perspectives on medical specialization. The Canadian Review of Sociology, Vol. 44, No. 2, pp. 151–73. López, J.J. and A. Robertson. 2007. "Ethics or Politics? The Emergence of ELSI Discourse in Canada. The Canadian Review of Sociology, Vol. 44, No. 2, pp. 201–18. T. Lenoir 1999. " Shaping biomedicine as an information science. In Proceedings of the 1998 Conference on the History and Heritage of Science Information Systems. M.E. Bowden, T.B. Hahn and R. Williams (eds.). ASIS Monograph Series, pp. 27–45. Lippman, A. 1992. "Led (astray) by genetic maps: The cartography of the human genome and health care. Social Science and Medicine, Vol. 35, No. 12, pp. 1468–76. Nelkin, D. 1995. The DNA Mystique: The Gene as Cultural Icon. New York : W.H. Freeman. NHS. 2002. Human Bodies, Human Choices: The Law on Human Organs and Tissue in England and Wales, A Consultation Report. London : Department of Health, NHS Department of the Welsh Assembly Government. NHS. 2003. Our Inheritance, Our Future: Realising the Potential of Genetics in the NHS. London : Department of Health. Overboe, J. 2007. "Disability and genetics: Affirming the bare life (the state of exception). The Canadian Review of Sociology, Vol. 44, No. 2, pp. 219–35. Pálsson, G. 2002. " Medical databases: The Icelandic case." In Gene Technology and Economy. S. Lundin and L. Åkesson (eds.). Lund : Nordic Academic Press, pp. 22–41. Pálsson, G. 2004. " Decoding relatedness and disease: The Icelandic biogenetic project." In From Molecular Genetics to Genomics: The Mapping Cultures of Twentieth-Century Genetics. J.-P Gaudilliere and H.-J. Rheinberger (eds.). London : Routledge, pp. 180–99. Pálsson, G. and K. Harardóttir. 2004. " Icelandic biobanks: An overview." Paper presented at the 4S & EASST Conference, Public Proofs: Science, Technology and Democracy. Paris, France, 25–28 Aug. Peltonen-Palotie, L. 2003. " Impact of human genome research." Paper presented at the BioTech Helsinki. Helsinki, Finland, 24–26 March. Peterson, A. 2005. "Securing our genetic health: Engendering trust in UK Biobank. Sociology of Health & Illness, Vol. 27, No. 2, pp. 271–92. Poudrier, J. 2007. "The geneticization of Aboriginal diabetes and obesity: Adding another scene to the story of the thrifty gene. The Canadian Review of Sociology, Vol. 44, No. 2, pp. 237–61. Putnam, L.L., N. Phillips and E. Chapman. 1996. " Metaphors of communication and organization." In Handbook of Organization Studies. S.R. Clegg, C. Hardy and WR. Norad (eds.). Thousand Oaks , Calif. : Sage, pp. 375–408. Rabinow, P. and N. Rose. 2003. Thoughts on a Concept of Biopower Today. Online at http:www.lse.ac.ukcollectionssoeiologypdfRabinowandRoseBiopowerToday03.pdf. Ratto, M. 2006. "Foundations and profiles: Splicing metaphors in genetic databases and biobanks. Public Understanding of Science, Vol. 14, No. 5, pp. 31–53. Reid, J. 2003. Government Response to the HGC Report: Inside Information Balancing Interests in the Use of Personal Genetic Data. Online at http:www.dh.gov.uk /PublicationsAndStatistics/LettersAndCirculars/DearColleagueLetters/DearColleagueLettersArticle/fs/en?CONTENT_ID=4005488&chk=iwH9UG.Rose, H. 2001. The Commodification of Bioinformation: The Icelandic Health Sector Database. London : The Wellcome Trust. Salter, B. and M. Jones. 2005. "Biobanks and bioethics: The politics of legitimation. Journal of European Public Policy, Vol. 12, No. 4, pp. 710–32. Schultze, U. and W.J. Orlikowski. 2001. "Metaphors of virtuality: Shaping an emergent reality. Information and Organization, Vol. 11, No. 1, pp. 45–77. SCST. 2003. Third Report: The Work oftheMedical Research Council. London : Select Committee on Science and Technology. Stafford, B. 1991. Body Criticism: Imaging the Unseen in Enlightenment Art and Medicine. Cambridge, Mass. and London : MIT Press. Stutman, R.K. and L.L. Putnam. 1994. " The consequences of language: A metaphorical look at the legalization of organizations." In The Legalistic Organization. S.B. Sitkin and R.J. Bies (eds.). Thousand Oaks , Calif. : Sage, pp. 281–302. Thacker, E. 2003. "What is biomedia? Configurations, Vol. 11, No. 1, pp. 47–79. Thacker, E. 2004. Biomedia. Minneapolis , Minn. : Minnesota University Press. Thacker, E. 2005. The Global Genome: Biotechnology, Politics, and Culture. Cambridge , Mass. : MIT Press. Trias, Q.O. 2003. "GenomEUtwin: A European community framework 5 functional genomics special initiative. Twin Research, Vol. 6, No. 5, p. 353. Tupasela, A. 2006. "Locating tissue collections in tissue economies: Deriving value from biomedical research. New Genetics & Society, Vol. 25, No. 1, pp. 33–49. R. Tutton and O. Corrigan, (eds.). 2004. Genetic Databases: Socio-Ethical Issues in the Collection and Use of DNA. London : Routledge. van Dijck, J. 1998. Imagenation: Popular Images of Genetics. New York : New York University Press. van Dijck, J. 2005. The Transparent Body. Seattle , Wash. : University of Washington Press. Waldby, C. 2003. The visible Human Project: Informatic Bodies and Posthuman Medicine. New York : Routledge. Wellcome 2002. " The UK Biobank study gets funding go-ahead." Press release online at http:www.wellcome.ac.ukdoc_WTD002895.html. Zinken, J., I. Hellsten and B. Nerlich. 2003. "What is 'cultural' about conceptual metaphors. International Journal of Communication, Vol. 13, Nos. 1–2, pp. 5–29. Citing Literature Volume44, Issue2May 2007Pages 175-200 ReferencesRelatedInformation
Referência(s)