Portal de Periódicos da CAPES

Development and validation of a printed information brochure for families of chronically critically ill patients*

2011; Lippincott Williams & Wilkins; Volume: 40; Issue: 1 Linguagem: Inglês

10.1097/ccm.0b013e31822d7901

1530-0293

Shannon S. Carson, Maihan B. Vu, Marion Danis, Sharon L. Camhi, Leslie P. Scheunemann, Christopher E. Cox, Laura Hendrix, Judith E. Nelson,

Childhood Cancer Survivors' Quality of Life

Families and other surrogate decisionmakers for chronically critically ill patients often lack information about patient prognosis or options for care. This study describes an approach to develop and validate a printed information brochure about chronic critical illness aimed at improving comprehension of the disease process and outcomes for patients' families and other surrogate decisionmakers.