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Brief report: The KIDSCREEN follow‐up study on Health‐related Quality of Life (HRQoL) in Spanish children and adolescents. Pilot test and representativeness☆

2009; Wiley; Volume: 33; Issue: 1 Linguagem: Inglês

10.1016/j.adolescence.2009.07.008

1095-9254

Jorge Palacio‐Vieira, Ester Villalonga-Olives, Jordi Alonso, José M Valderas, Michael Herdman, Mireia Espallargues, Silvina Berra, Luís Rajmil,

Cerebral Palsy and Movement Disorders

ABSTRACT The Spanish KIDSCREEN follow‐up study reassessed the Spanish baseline sample ( n = 840) of the European KIDSCREEN study 3 years later (2006). The aims of this paper were to describe the KIDSCREEN follow‐up study and the pilot test, and to analyze participation rates and representativeness. Instruments included the KIDSCREEN‐52 HRQoL measure and a set of scales including the possible explanatory variables. Focus groups and individual interviews were carried out in a pilot test. Participants were compared with non‐participants at baseline, and also with Eurostat census data. Twenty‐two out of 24 subjects were interviewed in the pilot test. Fifteen items needed to be modified after the pilot test. Participation rate reached 54% ( n = 454). Participants (mean age = 12.71 years old) were on average 6 months younger than non‐participants ( p = 0.03), and from more educated families. KIDSCREEN follow‐up instrumentation seems adequate for collecting factors with potential influence on HRQoL. Follow‐up respondents' representativeness seems to be acceptable.