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Evaluation of the Intermittent Exotropia Questionnaire Using Rasch Analysis

2015; American Medical Association; Volume: 133; Issue: 4 Linguagem: Inglês

10.1001/jamaophthalmol.2014.5622

2168-6173

David A. Leske, Jonathan M. Holmes, B. Michele Melia, Aaron M. Miller, Jorie Jackson, Donny W. Suh, Susan Hayes, Stephen R. Glaser, Monica Pacheco, Laura Graham, Evelyn A. Paysse, Kimberly G. Yen, Mohamed Hussein, Paul G. Steinkuller, David K. Coats, Lingkun Kong, Sean P. Donahue, David G. Morrison, Lori Ann F. Kehler, Robert L. Estes, Lisa Fraine, David B. Petersen, J. Ryan McMurtrey, Nicholas A. Sala, Jeanine Romeo, Earl R. Crouch, Gaylord Ventura, Brian G. Mohney, Tomohiko Yamada, Sarah R. Hatt, Rebecca Nielsen, Laura Liebermann, Rosanne Superstein, Caroline Bélanger, Nicole Fallaha, Maryse Thibeault, Benjamin H. Ticho, Alexander J. Khammar, Megan Allen, Deborah A. Clausius, Darren L. Hoover, Pamela A. Huston, Laura B. Enyedi, David K. Wallace, Tammy L. Yanovitch, Sarah L. Jones, David Silbert, Noelle Matta, Richard G. Weaver, Eric Hein, Lori Cooke, Scott R. Lambert, Phoebe D. Lenhart, Amy K. Hutchinson, Judy Brower, ROBERT P. RUTSTEIN, Wendy Marsh‐Tootle, Katherine K. Weise, Marcela Frazier, Ross Roegner, Susan A. Cotter, Angela Chen, Carmen Barnhardt, Kristine Huang, Paula Handford, Reena Patel, Catherine Heyman, Raymond Chu, Lernik Mesropian, Susan Parker, Susanna M. Tamkins, Todd A Goldblum, Kenneth M. Adams, Angela Alfaro, Christie L. Morse, Maynard B. Wheeler, Melanie L. Christian, C. Gail Summers, Jill S. Anderson, Erick D. Bothun, Inge De Becker, Sara Downes, Ann M. Holleschau, Nausheen Khuddus, Tammy Price, Bahram Rahmani, Hawke Yoon, Yana Kiesau, Aaliyah Hamidullah, Joan T. Roberts, Heather Klem, Brian W. Arthur, Lesley E. MacSween, William F. Astle, Kenneth Romanchuk, Emi Sanders, Robert H. Duckman, Marilyn Vricella, Sara Meeder, Patricia L. Davis, Indre Rudaitis, Mae Millicent W. Peterseim, Ronald Teed, Carol Bradham, Mary Louise Z. Collins, Allison Jensen, Maureen Flanagan, Daniel J. Karr, Allison I. Summers, Ann U. Stout, Paula K. Rauch, Yi Pang, Anesu Mvududu, Michael J. Bartiss, Tennille F. McGaw, Faruk Ogre, Beth Colon, Mitchell Scheiman, K Pollack, Jean E. Ramsey, Stephen P. Christiansen, Elise Harb, Vanessa Vazquez, Ruth E. Manny, Karen D. Fern, Catherine McDaniel, Heather A. Anderson, Joan Do, A. Paula Grigorian, Rebecca Dent, Ilana Friedman, Evelyn K. Koestenblatt, Stephen Van Iderstine, Michael X. Repka, Hee Jung Park, Xiaonong Liu, Alex Christoff, David Tien, Samantha Garner, Richard London, Jayne L. Silver, Don Lyon, Tawna L. Roberts, Vivian C. Wong, Kristy Dunlap, Matthew D. Gearinger, Peter MacDowell, Mary O’Hara, Nandini Gandhi, Elias I. Traboulsi, Paul J. Rychwalski, Susan Crowe, Edward W. Cheeseman, Michelle Bass, Jeffery A Colburn, Eileen Dittman, Susannah Q. Longmuir, Wanda Ottar Pfeifer, Daniel E. Neely, Michele E. Whitaker, Marjean Taylor Kulp, Andrew J. Toole, Tamara Oechslin, Freda Dallas, Nancy J. Stevens, Yasmin S. Bradfield, Barbara Soderling, Mitchell B. Strominger, Shelley Klein, Erin P. Herlihy, Jennifer J. Brady, Gregory Ostrow, Laura Kirkeby, Tamiesha Frempong, Dipali Dave, Stacy L. Pineles, Marianne Esguerra, S. Ayse Erzurum, Diana C. McOwen, Brian J. Forbes, Gil Binenbaum, Karen A. Karp, Tara Cronin, Cheryl Capobianco, Robert J. Peters, Jan Hilbrands, Daniel M. Laby, Heidi Martin, Jacqueline Rodena, Annette Bade, Airaj Fasiuddin, Blair Spencer, Justin Smith, Mei Mellott, Troy Kieser,

Ophthalmology and Visual Impairment Studies

The Intermittent Exotropia Questionnaire (IXTQ) is a patient, proxy, and parental report of quality of life specific to children with intermittent exotropia. We refine the IXTQ using Rasch analysis to improve reliability and validity.Rasch analysis was performed on responses of 575 patients with intermittent exotropia enrolled from May 15, 2008, through July 24, 2013, and their parents from each of the 4 IXTQ health-related quality-of-life questionnaires (child 5 through 7 years of age and child 8 through 17 years of age, proxy, and parent questionnaires). Questionnaire performance and structure were confirmed in a separate cohort of 379 patients with intermittent exotropia. One item was removed from the 12-item child and proxy questionnaires, and response options in the 8- to 17-year-old child IXTQ and proxy IXTQ were combined into 3 response options for both questionnaires. Targeting was relatively poor for the child and proxy questionnaires. For the parent questionnaire, 3 subscales (psychosocial, function, and surgery) were evident. One item was removed from the psychosocial subscale. Resulting subscales had appropriate targeting.The Rasch-revised IXTQ may be a useful instrument for determining how intermittent exotropia affects health-related quality of life of children with intermittent exotropia and their parents, particularly for cohort studies.