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Understanding significant others’ experience of aphasia and rehabilitation following stroke

2013; Informa; Volume: 36; Issue: 21 Linguagem: Inglês

10.3109/09638288.2013.870608

1464-5165

Marie‐Christine Hallé, Guylaine Le Dorze,

Neurobiology of Language and Bilingualism

Purpose: It is currently unknown how rehabilitation services contribute to significant others' adjustment to stroke with aphasia since their experience of rehabilitation has not been studied before. The purpose of this study was thus to understand significant others' experience of aphasia rehabilitation within the context of post-stroke rehabilitation. Methods: Individual interviews were carried out with 12 significant others of persons who became aphasic as a result of a stroke and were discharged from rehabilitation in the past 3 months. Data were analyzed with a grounded theory approach. Results: "Being centered on the aphasic person" was the core category triggered by the significant other's perception of the stroke survivor's vulnerability and his/her feelings of attachment towards that person. Through their interactions with professionals, significant others assumed that rehabilitation was also centered on the aphasic person; a perspective that was reinforced. Consequently, significant others participated in rehabilitation as caregivers and expected rehabilitation to meet their caregiver needs but not other personal and relational needs. Their appraisal of rehabilitation was thus related to the satisfaction or not of caregiver needs. Conclusions: With a greater sensitivity to significant others who focus on the stroke survivor and disregard their own needs, rehabilitation professionals and especially speech-language therapists, can assist families in reestablishing communication and satisfying relationships which are affected because of aphasia. Implications for RehabilitationThis qualitative study shows that significant others of aphasic stroke survivors experience rehabilitation as services focused on the person who had the stroke.Significant others' satisfaction with rehabilitation is not related to the fulfillment of their personal (e.g. resuming their activities) and relational needs (e.g. good communication with the person with aphasia).When offering interventions targeting significant others' needs, rehabilitation professionals should emphasize the rationale for these interventions so that significant others grasp the intention and potential benefits of these offers.