Coping with the care of a severely disabled child
2007; Wiley; Volume: 4; Issue: 1 Linguagem: Inglês
10.1111/j.1365-2524.1996.tb00045.x
ISSN1365-2524
Autores Tópico(s)Family and Patient Care in Intensive Care Units
ResumoHealth & Social Care in the CommunityVolume 4, Issue 1 p. 30-40 Coping with the care of a severely disabled child Bryony Beresford PhD, BSc, Corresponding Author Bryony Beresford PhD, BSc Social Policy Research Unit, University of York, Heslington, York2Bryony Beresford Social Policy Research Unit University of York Heslington York YO1 5DD UKSearch for more papers by this author Bryony Beresford PhD, BSc, Corresponding Author Bryony Beresford PhD, BSc Social Policy Research Unit, University of York, Heslington, York2Bryony Beresford Social Policy Research Unit University of York Heslington York YO1 5DD UKSearch for more papers by this author First published: January 1996 https://doi.org/10.1111/j.1365-2524.1996.tb00045.xCitations: 25AboutPDF ToolsRequest permissionExport citationAdd to favoritesTrack citation ShareShare Give accessShare full text accessShare full-text accessPlease review our Terms and Conditions of Use and check box below to share full-text version of article.I have read and accept the Wiley Online Library Terms and Conditions of UseShareable LinkUse the link below to share a full-text version of this article with your friends and colleagues. Learn more.Copy URL Abstract The unrelenting, and often overwhelming, stresses experienced by parents caring for a disabled child have been well charted, as have their impact on personal and family well-being. This paper reports on a study which took such research a step further by focusing on the ways parents cope with the stresses and strains of care. An in-depth qualitative approach was used in a longitudinal study of 20 families caring for a severely disabled child. The work was theoretically grounded in Lazarus & Folkman's (1984) process model of stress and coping, which emphasizes the importance of coping strategies and coping resources in mediating the adverse effects of stress. The paper reports on the way in which the negative aspects of caring for a disabled child were balanced by two positive factors: the parent-child relationship and the ways parents coped with the problems they encountered and the emotional distress they felt. Parents were found to have a wide range of coping strategies and they employed enormous creativity to deal with the problems they faced. These included strategies which acted directly on the source of stress, information-seeking, planning, taking control, and self-maintenance strategies. The role of services in supporting parents in the ways they chose to cope is illustrated. References Beresford B. (1993) Easing the strain: assessing the impact of a Family Fund grant on mothers caring for a severely disabled child. Child: care, health and development 19 (6), 369– 378. Beresford B. (1994) Resources and strategies: how parents cope with the care of a disabled child. Journal of Child Psychology and Psychiatry 35 (1), 171– 209. Beresford B. (1995) Expert Opinions: a national survey of parents caring for a severely disabled child. The Policy Press, Bristol . Bone M. & Meltzer H. (1989) The Prevalence of Disability Among Children. HMSO, London . Bradshaw J. & Lawton D. 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