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[The Spanish Home Enteral Nutrition registry of the year 2009: from the NADYA-SENPE group].

2011; National Institutes of Health; Volume: 25; Issue: 6 Linguagem: Inglês

Carmina Wanden-Berghe, J. C. Puiggrós, Alfonso Calañas, Cristina Cuerda, Pedro Pablo García‐Luna, A. Rabassa-Soler, José Antonio Irles Rocamora, A. Romero, Miguel Ángel Martínez Olmos, E. Camarero, M. Lecha, Carmen Gómez‐Candela, Alfonso Vidal‐Casariego, L. Laborda, A. Zapata, Luis Miguel Luengo Pérez, A. Pérez de la Cruz, M. A. Penacho, Daniel Antonio de Luis, R. M. Parés, Yaiza García, Pérez Suárez, Jose Manuel Sánchez-Migallón, A. Apezetxea, Pilar Matía‐Martín, C. Martínez, E Martí, C Garde, Antonio José Jiménez Muñoz, B. Cánovas, M.a A. Bobis, J Ordóñez,

Palliative Care and End-of-Life Issues

To describe the Home Enteral Nutrition Characteristics (HEN) recorded by the group NADYA-SENPE during 2009.collection and analysis of the data voluntary recorded in the HEN registry from the NADYA-SENPE group from January 1st to December 31st.6.540 HEN patients were registered, 5.11% more than the previous year and 6,649 episodes (3,135 in women, 47,93%) from 32 different hospitals. 6,238 of them (95,38%) were over 14 years. The mean age of the patients under 14 yr was 3,67 ± 2,86 and it was 72,10 ± 16,89 in those over 14 yr group. The base illness registered more frequently was the neurological disorders in 2,732 (41,77%) patients, followed by cancer patients in 1,838; 28,10%. The enteral access route was registered in 1,123 (17,17%) of the episodes, being more frequent the administration by nasogastric tube 562 (50,04%). The mean length of nutritional treatment by episode was 323 days (10,77 months). 606 episodes of HEN ended, being the principal reasons for discontinuing treatment the patient death in 295 (48,68%) occasions. The transition to oral feeding occurred in 219 (36,14%) cases. Patients maintained normal activity in 2162 (32,55%) HEN episodes and 2,468 (37,13%) cases were living "bed-couch". The level of dependence was "total" in 2,598 (39,07%) of the episodes recorded. The nutritional formula was provided by the hospital in 4,183 (62,91%) cases and by the reference pharmacy in 2,262 (el 34,02%). Consumables were provided by the hospital in 3,531 (53,11%) cases.The number of HEN patients recorded increased from the year 2008, continuing the gradual growth increase since the start of registration. The characteristics of the patients remain in the same profile as in previous years.