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Patients' Perceptions of their Experiences with ESRD and Hemodialysis Treatment

1998; SAGE Publishing; Volume: 8; Issue: 6 Linguagem: Inglês

10.1177/104973239800800604

1552-7557

Deborah M. Gregory, Christine Way, Thomas Hutchinson, Brendan J. Barrett, Patrick S. Parfrey,

Health Systems, Economic Evaluations, Quality of Life

A grounded theory methodology was used to explore patients' experiences with end-stage renal disease (ESRD) and hemodialysis. The emerging theory suggests that a "new sense of self" is an emotional/psychological state that fluctuates with the evolving meanings of ill-ness and treatment and perceived quality of supports. The findings indicate that when con-fronted with this new way of being in the world, the individual becomes cognizant of an uncertain future, continued dependence on life-sustaining technology and the expertise of health care providers, and the demands on and sacrifices incurred by significant others. All aspects of patients' experiences with ESRD and hemodialysis treatment must be considered if health care providers are tofacilitate positive health outcomes.