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A day in the life of a patient with DDEB

2004; Elsevier BV; Volume: 51; Issue: 1 Linguagem: Inglês

10.1016/j.jaad.2004.01.032

1097-6787

Michael J Dietz,

Genital Health and Disease

The alarm reads 4:55 a.m.—time to roll out of bed for another day without waking Sue, my wife and best friend. After brushing and flossing what remains of my original teeth, a new blister on my leg needs to be popped, and a few dressings reapplied before gearing up for a morning run with Clyde, my loyal four-legged running buddy. A bump on the side of a chair in the bedroom rubs a thin patch of skin off my right knee. It will sting in the shower after the run—new sores always do that. Cut the non-adhera dressing, smear it with ointment, tape with Transpore, put on the sweat pants, shoes, and jacket, and Clyde and I are off into the dark, windy chill for a short 2-mile run.