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Self-Reports Versus Parental Perceptions of Health-Related Quality of Life Among Deaf Children and Adolescents

2015; Oxford University Press; Volume: 20; Issue: 3 Linguagem: Inglês

10.1093/deafed/env018

1465-7325

María Jesús Pardo‐Guijarro, Mária Martínez-Andrés, Blanca Notario‐Pacheco, Montserrat Solera-Martínez, Mairena Sánchez‐López, Vicente Martínez‐Vizcaíno,

Family and Disability Support Research

The aim of this study was to assess the agreement between deaf children's and adolescents' self-ratings of health-related quality of life (HRQoL) and their parents' proxy reports. This observational cross-sectional study included 114 deaf 8- to 18-years-old students and proxy family members. HRQoL was measured using the KIDSCREEN-27 questionnaire, which was adapted to Spanish sign language for children, with a written version for parents. Respondents completed a self-administered paper questionnaire. Parents' and children's mean scores differences were not significant, except for the "Autonomy and Parents" and "Peers and Social Support" dimensions. Children aged 8–11 years scored higher in some domains of QoL compared to those aged 12–18 years. The level of agreement between children/adolescents' and parents/proxies' responses was acceptable, except for the dimension "Autonomy and Parents." Overall, deaf children/adolescents' self-ratings of HRQoL did not differ from their parents' proxy reports; however, differences were found in the dimensions that explored the quality of the interaction of children/adolescents and parents, the perceived level of autonomy, and social relations and support.