Portal de Periódicos da CAPES

Health Care Transition for Emerging Adults with Chronic Health Conditions and Disabilities

2012; Elsevier BV; Volume: 41; Issue: 10 Linguagem: Inglês

10.3928/00904481-20120924-16

1938-2359

John Reiss,

Gender, Labor, and Family Dynamics

FeatureHealth Care Transition for Emerging Adults with Chronic Health Conditions and Disabilities John Reiss, PhD, , PhD John Reiss, PhD Published Online:September 24, 2012https://doi.org/10.3928/00904481-20120924-16Cited by:14PDFView Full Text ToolsAdd to favoritesDownload CitationsTrack Citations ShareShare onFacebookTwitterLinkedInRedditEmail SectionsMore1.Blum R, Garell D, Hodgman C, et al.Transition from child-centered to adult health-care: systems for adolescents with chronic conditions. J Adolesc Health. 1993; 14:570–57610.1016/1054-139X(93)90143-D Crossref MedlineGoogle Scholar2.American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics. 2002; 110 (6):1304–1306 Crossref MedlineGoogle Scholar3.American College of Cardiology. Care of the adult with congenital heart disease. J Am Coll Cardiol. 2001; 37:1166–1198 Crossref MedlineGoogle Scholar4.Healthy and Ready to Work. MCHB HRTW Initiative. Available at: www.syntiro.org/hrtw/systems/fundproj.html. Accessed on Nov. 1, 2011. Google Scholar5.John Snow, Inc. Healthy and Ready to Work Transition models Project: Summary of Effective Approaches. Boston: John Snow, Inc; 2008. Google Scholar6.McLaughlin SE, Diener-West M, Indurkhya A, Rubin H, Heckmann R, Boyle MP. Improving transition from pediatric to adult cystic fibrosis care: lessons from a national survey of current practices. Pediatrics. 2008; 121:e1160–e1166.10.1542/peds.2007-2217 Crossref MedlineGoogle Scholar7.American Academy of Pediatrics, Department of Research. Survey: transition services lacking for teens with special needs. AAP News. 2009; 30(11):12. Google Scholar8.McManus M, Fox H, O'Connor K, Chapman T, MacKinnon . Pediatric Perspectives and Practices on Transitioning Adolescents with Special Needs to Adult Health Care. Washington, DC: National Alliance to Advance Adolescent Health; 2008. Fact Sheet No. 6. Available at: www.thenationalalliance.org/jan07/factsheet6.pdf. Accessed Sept. 16, 2012. Google Scholar9.Reiss JG, Gibson RW, Walker LR. Health care transition: youth, family, and provider perspectives. Pediatrics. 2005; 115(1):112–120. Crossref MedlineGoogle Scholar10.Cooley WC, Sagerman PJAmerican Academy of Pediatrics, Transitions Clinical Report Authoring Group. Clinical report — supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics. 2011; 128(1):182–200.10.1542/peds.2011-0969 Crossref MedlineGoogle Scholar11.Kennedy A, Sloman F, Douglass JA, Sawyer SM. Young people with chronic illness: the approach to transition. Intern Med J. 2007; 37(8):555–560.10.1111/j.1445-5994.2007.01440.x Crossref MedlineGoogle Scholar12.Soanes C, Timmons S. 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Ithaca, NY: Cornell University Press; 1992. CrossrefGoogle Scholar22.Luther B. Age-specific activities that support successful transition to adulthood for children with disabilities. Orthopaed Nurs. 2001; 20:23–29.10.1097/00006416-200101000-00006 Crossref MedlineGoogle Scholar23.Casey B, Jones RM, Hare TA. The adolescent brain. Ann N Y Acad Sci. 2008; 1124:111–126.10.1196/annals.1440.010 Crossref MedlineGoogle Scholar24.White PH, Hackett P. On the threshold to the adult medical home: care coordination in transition. Pediatr Ann. 2009; 38(9):513–520.10.3928/00904481-20090820-11 LinkGoogle Scholar25.Hergenroeder AC, Brewer , eds.A survey of pediatric nephrologists on adolescent sexual health. Pediatr Nephrol. 2001; 16:57–60.10.1007/s004670000466 Crossref MedlineGoogle Scholar26.Sawicki GS, Lukens-Bull K, Yin X, et al.Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ—Transition Readiness Assessment Questionnaire. 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Nguyen T, Stewart D, Rosenbaum P, Baptiste S, Kraus de Camargo O and Gorter J (2018) Using the ICF in transition research and practice? Lessons from a scoping review, Research in Developmental Disabilities, 10.1016/j.ridd.2017.11.003, 72, (225-239), Online publication date: 1-Jan-2018. Davidson L, Doyle M and Silver E (2017) Discussing Future Goals and Legal Aspects of Health Care: Essential Steps in Transitioning Youth to Adult-Oriented Care, Clinical Pediatrics, 10.1177/0009922817706142, 56:10, (902-908), Online publication date: 1-Sep-2017. Seeley A and Lindeke L (2017) Developing a Transition Care Coordination Program for Youth With Spina Bifida, Journal of Pediatric Health Care, 10.1016/j.pedhc.2017.04.015, 31:6, (627-633), Online publication date: 1-Nov-2017. 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Leake E, Koopmans E and Sanders C (2020) Primary Care Providers Involvement in Caring for Young Adults with Complex Chronic Conditions Exiting Pediatric Care: An Integrative Literature Review, Comprehensive Child and Adolescent Nursing, 10.1080/24694193.2020.1733707, (1-22) Request Permissions InformationCopyright 2012, SLACK IncorporatedPDF downloadAddress correspondence to: John Reiss, PhD, Institute for Child Health Policy, University of Florida, Box 100147, Gainesville, FL 32610-0147; fax: 352-265-7221; email: [email protected]edu.John Reiss, PhD, is Associate Professor of Pediatrics, Institute for Child Health Policy, University of Florida.Disclosure: Dr. Reiss has no relevant financial relationships to disclose.