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Cystic fibrosis

2007; BMJ; Volume: 334; Issue: 7606 Linguagem: Inglês

10.1136/bmj.39188.741944.47

0959-8138

Wicks Emma,

Cystic Fibrosis Research Advances

As the Good Witch told Dorothy in the Wizard of Oz: it is always best to start at the beginning. Growing up, I always knew that I had cystic fibrosis, the same way I knew I had blue eyes and my cousins could all run faster than me. I was lucky enough—though my parents did not think so at the time—to be diagnosed at two days old. The right information at diagnosis is crucial. After being told their daughter had a disease whose name they could not spell, and with no information from the hospital, my parents found out about it for themselves. Parents nowadays might use the internet; mine went to the library. The book they found, printed 15 years earlier, told them to abandon all hope and not become too attached to me.