Portal de Periódicos da CAPES

The National Palliative Care Research Center: Ten Years of Promoting and Developing Research in Palliative Care

2018; Mary Ann Liebert, Inc.; Volume: 21; Issue: 11 Linguagem: Inglês

10.1089/jpm.2018.0204

1096-6218

R. Sean Morrison, Melissa D. Aldridge, James A. Block, Lily Chiu, Catherine Maroney, Corey Morrison, Diane E. Meier,

Patient Dignity and Privacy

Background: The evidence base to support high-quality clinical care and number of scientists available to develop this evidence base are inadequate. Objective: To describe the first 10 years of the National Palliative Care Research Center's (NPCRC) programs and their outcomes. Design: Established in 2005, NPCRC was created in direct response to the recommendations of the Institute of Medicine. Specifically, NPCRC was created to expand the palliative care evidence-based needed for both health policy and clinical practice by supporting research scientists, stimulating research and innovation, and creating a community of researchers focused on the needs of persons with serious illness and their families. Measurements: Subsequent grant funding following NPCRC investment (web searches of NIH Research Portfolio Online Reporting Tools [RePORT], Veterans Administration and Patient Centered Outcomes Research Institute [PCORI] grant databases, grantee on-line surveys, and grantee annual reports) promotions (grantee on-line surveys and annual reports), publications (PubMed searches), and NPCRC participant satisfaction (grantee questionnaires). Results: As of July 2017, NPCRC has funded 47 junior investigators representing over 10 disciplines. These investigators have leveraged NPCRC's $7.8 million investment into 52 federal grants totaling $74.8 million dollars and 69 foundation grants totaling $16 million. Thirty-five grants ($5.8 million) have been awarded to experienced investigators, resulting in additional grant funding of $104.5 million dollars ($78.5 million federal, $26 million nonfederal). Satisfaction with NPCRC's program has been uniformly high and policy efforts have resulted in enhanced federal funding opportunities in palliative care research. Conclusions: NPCRC's focus on people and infrastructure in conjunction with a top-down bottom-up strategy has been critical in improving the palliative care evidence base.