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Scientific Registry of the International Society for Heart and Lung Transplantation: Introduction to the 2009 Annual Reports

2009; Elsevier BV; Volume: 28; Issue: 10 Linguagem: Inglês

10.1016/j.healun.2009.08.005

1557-3117

Marshall I. Hertz, Paul Aurora, Jason D. Christie, Fabienne Dobbels, Leah B. Edwards, Richard Kirk, Anna Y. Kucheryavaya, Axel Rahmel, Amanda W. Rowe, Josef Stehlik, David O. Taylor,

Organ and Tissue Transplantation Research

We are pleased to present the 2009 Annual Reports of the Scientific Registry of the International Society for Heart and Lung Transplantation (the Registry). Since 1983 the Registry has collected and reported data for more than 117,000 heart, heart-lung, and lung transplants. The past year has been our most active to date, with 5,276 transplants added to the Registry from more than 225 centers worldwide. Much gratitude is owed the many heart and lung transplant surgeons and physicians, clinical coordinators, data coordinators, and organ exchange organizations (OEO) throughout the world, whose timely and accurate submission of data has made attaining these milestones possible (Appendix). We are especially pleased to announce our new relationship with the Organización Nacional de Trasplantes (ONT), which reported, for the first time, lung transplants performed at 8 Spanish centers.This year, we again report some transitions in Registry report authorship: First, Dr Josef Stehlik coauthored the Adult Heart Transplant report; Dr. Stehlik will assume the position of Associate Medical Director from Dr. David Taylor, who has served extremely ably in that capacity since 2002. We also regret the passing of Dr. Mark Boucek, who authored the Pediatric Heart and Lung Transplant Registry report from its inception in 1997 until 2007. The very existence of this report reflected the determination of Dr. Boucek and other pediatric members to give pediatric transplantation a specific identity within the Society.There are many ways to access the Transplant Registry data. As in past years, all of the data figures and tables included in the Registry reports are also available on the ISHLT Web site (www.ishlt.org/registries) in MS PowerPoint (Microsoft Corp, Bellingham, WA) format. The Web site also contains many additional data slides that are not included in the published reports. Those wishing to view the published Heart, Lung, and Heart-Lung, and Pediatric reports online may do so at www.cardiosource.com.In addition to the information available in the published Registry reports and slide sets, continent-specific and center-specific data reports can be obtained from the secure section of the ISHLT Web site (www.ishlt.org). Continent-specific reports are available to everyone and allow comparison of continent-specific transplant data with that of all transplants submitted to the Registry. Center-specific reports allow comparison of one's individual center with that of all transplants submitted to the Registry. These reports are available to all actively participating centers, including those submitting data through organ exchange organizations. Because we only want staff members affiliated with each center to access center-specific reports from their own center, center-specific reports require a user name and password, which can be obtained from Kathryn Philibin ( [email protected] ).We were pleased that 4 abstracts based on Registry data were presented at this year's ISHLT Scientific Sessions in Paris, France: (1) "Focusing on the Future: Development of a Predictive Model for Long-Term Survival," presented by Dr. Cynthia Gries; (2) "Body Mass Index as Predictor of Pediatric Heart Transplant Outcome," presented by Dr. Beth Kaufman; (3) "Predictors of Obesity in Children after Heart Transplant," presented by Dr. Beth Kaufman; and (4) "Quantitation of the Effect of Donor-Associated Characteristics on Post-Transplant Survival," presented by Dr. Josef Stehlik. These presentations illustrate the ongoing commitment of the Society and the Registry to the promotion of scholarship and the development of new clinical investigators.The Registry remains the world's most comprehensive record of heart and lung transplant activity, practices, and outcomes; and a resource for ongoing research regarding these continually evolving areas of practice. In a recent survey, the ISHLT membership indicated that the Registry is one of the 3 most valuable activities of the Society, together with the Annual Meeting and Scientific Sessions, and the Journal of Heart and Lung Transplantation. We appreciate the ongoing commitment by the Society and its members to the continued health and growth of this valuable resource.Disclosure StatementAll relevant disclosures for the Registry director, executive committee members and authors are on file with ISHLT and can be made available for review by contacting the Executive Director of ISHLT. We are pleased to present the 2009 Annual Reports of the Scientific Registry of the International Society for Heart and Lung Transplantation (the Registry). Since 1983 the Registry has collected and reported data for more than 117,000 heart, heart-lung, and lung transplants. The past year has been our most active to date, with 5,276 transplants added to the Registry from more than 225 centers worldwide. Much gratitude is owed the many heart and lung transplant surgeons and physicians, clinical coordinators, data coordinators, and organ exchange organizations (OEO) throughout the world, whose timely and accurate submission of data has made attaining these milestones possible (Appendix). We are especially pleased to announce our new relationship with the Organización Nacional de Trasplantes (ONT), which reported, for the first time, lung transplants performed at 8 Spanish centers. This year, we again report some transitions in Registry report authorship: First, Dr Josef Stehlik coauthored the Adult Heart Transplant report; Dr. Stehlik will assume the position of Associate Medical Director from Dr. David Taylor, who has served extremely ably in that capacity since 2002. We also regret the passing of Dr. Mark Boucek, who authored the Pediatric Heart and Lung Transplant Registry report from its inception in 1997 until 2007. The very existence of this report reflected the determination of Dr. Boucek and other pediatric members to give pediatric transplantation a specific identity within the Society. There are many ways to access the Transplant Registry data. As in past years, all of the data figures and tables included in the Registry reports are also available on the ISHLT Web site (www.ishlt.org/registries) in MS PowerPoint (Microsoft Corp, Bellingham, WA) format. The Web site also contains many additional data slides that are not included in the published reports. Those wishing to view the published Heart, Lung, and Heart-Lung, and Pediatric reports online may do so at www.cardiosource.com. In addition to the information available in the published Registry reports and slide sets, continent-specific and center-specific data reports can be obtained from the secure section of the ISHLT Web site (www.ishlt.org). Continent-specific reports are available to everyone and allow comparison of continent-specific transplant data with that of all transplants submitted to the Registry. Center-specific reports allow comparison of one's individual center with that of all transplants submitted to the Registry. These reports are available to all actively participating centers, including those submitting data through organ exchange organizations. Because we only want staff members affiliated with each center to access center-specific reports from their own center, center-specific reports require a user name and password, which can be obtained from Kathryn Philibin ( [email protected] ). We were pleased that 4 abstracts based on Registry data were presented at this year's ISHLT Scientific Sessions in Paris, France: (1) "Focusing on the Future: Development of a Predictive Model for Long-Term Survival," presented by Dr. Cynthia Gries; (2) "Body Mass Index as Predictor of Pediatric Heart Transplant Outcome," presented by Dr. Beth Kaufman; (3) "Predictors of Obesity in Children after Heart Transplant," presented by Dr. Beth Kaufman; and (4) "Quantitation of the Effect of Donor-Associated Characteristics on Post-Transplant Survival," presented by Dr. Josef Stehlik. These presentations illustrate the ongoing commitment of the Society and the Registry to the promotion of scholarship and the development of new clinical investigators. The Registry remains the world's most comprehensive record of heart and lung transplant activity, practices, and outcomes; and a resource for ongoing research regarding these continually evolving areas of practice. In a recent survey, the ISHLT membership indicated that the Registry is one of the 3 most valuable activities of the Society, together with the Annual Meeting and Scientific Sessions, and the Journal of Heart and Lung Transplantation. We appreciate the ongoing commitment by the Society and its members to the continued health and growth of this valuable resource. Disclosure StatementAll relevant disclosures for the Registry director, executive committee members and authors are on file with ISHLT and can be made available for review by contacting the Executive Director of ISHLT. All relevant disclosures for the Registry director, executive committee members and authors are on file with ISHLT and can be made available for review by contacting the Executive Director of ISHLT. AppendixTabled 1List of Thoracic Transplant Centers Reporting Data to the ISHLT Transplant Registry for Transplants Performed Between January 1, 2007, and June 30, 2008CountryCenters reporting transplants to ISHLTArgentinaFundacion FavaloroHospital ItalianoAustraliaaData provided via Australia and New Zealand Cardiothoracic Transplant Registry (ANZCOTR).St. VincentRoyal ChildrenThe Prince Charles HospitalThe Alfred HospitalRoyal Perth HospitalAustriabData provided via Eurotransplant (ET).Allgemeines Krankenhaus WienUniversitätsklinik InnsbruckLandeskrankenhaus GrazBelgiumbData provided via Eurotransplant (ET).Hôpital Erasme BruxellesUniversitair Ziekenhuis AntwerpenOnze Lieve Vrouw Ziekenhuis AalstUniversitair Ziekenhuis GentCentre Hospitalier Universitaire LiègeCliniques Universitaires, Université Catholique de LouvainUZ Gasthuisberg LeuvenBrazilHeart Institute-University São Paulo Hospital das ClinicasHospital de MessejanaCanadaRoyal Victoria HospitalThe Toronto General HospitalHospital Notre-DameQuebec Heart Institute—Laval HospitalOttawa Heart InstituteHealth Sciences CentreUniversity of Alberta Hospitals/Walter C. Mackenzie Health SciencesThe Hospital For Sick ChildrenChileHospital Gustavo FrickeColombiaCliniica CardiovascularCroatiabData provided via Eurotransplant (ET).University Clinical Hospital ZagrebUniversity Hospital DubravaDenmarkcData provided via Scandiatransplant.Skejby University HospitalRigshospitalet, National University HospitalFinlandcData provided via Scandiatransplant.Helsinki University Central HospitalChildren's Hospital, University of HelsinkiGermanybData provided via Eurotransplant (ET).Universität des Saarlandes Homburg/SaarHerzzentrum Dresden GmbHDeutsches Herzzentrum BerlinUniversitätsklinik KölnUniversität Leipzig—HerzzentrumKerckhoff Klinik, Bad NauheimKlinikum der Universität RegensburgHerzzentrum Nordrhein-Westfalen Bad OeynhausenUniversitätsklinikum EssenJohannes Gutenberg Universität MainzUniversitätsklinikum MünsterRuprecht-Karls-Universität HeidelbergMedizinische Hochschule HannoverUniversitätsklinikum GöttingenUniversitätsklinikum AachenKlinikum FuldaKlinikum der Justus-Liebig-Universität GiessenUniversitätsklinikum Schleswig-Holstein KielJohann Wolfgang Goethe Universität Frankfurt/MainFriedrich Schiller Universität JenaFriedrich Alexander Universität ErlangenUniversitätsklinikum WürzburgLudwig Maximilians Universität MünchenDeutsches Herzzentrum MünchenUniversitätsklinikum HamburgKlinikum der Albert-Ludwigs-Universität Freiburg im BreisgauGreeceOnassis Cardiac Surgery CenterHungaryHungarian Institute of CardiologyIrelanddData provided via United Kingdom Transplant Support Service Authority (UKTSSA).Mater HospitalIsraelRabin Medical Center (Belinson Campus)ItalyNiguarda CA Granda HospitalPoliclinico S. Orsola—Universita degli StudiJapanTohoku University HospitalSaitama Medical School HospitalKoreaYongdong Severance HospitalNetherlandsbData provided via Eurotransplant (ET).Universitair Medisch Centrum UtrechtErasmus Medisch Centrum RotterdamUniversitair Medisch Centrum GroningenNew ZealandGreen Lane HospitalAuckland City HospitalNorwaycData provided via Scandiatransplant.Rikshospitalet—National Hospital of NorwaySloveniabData provided via Eurotransplant (ET).University Medical Center LjubljanaSouth AfricaMilpark HospitalSpainComplejo Hospitalario Universitario Juan CanalejoeLung data provided via Organización Nacional de Trasplantes (ONT).Hospital Universitario Marques De ValdecillaeLung data provided via Organización Nacional de Trasplantes (ONT).Hospital Universitario Reina SofiaeLung data provided via Organización Nacional de Trasplantes (ONT).Hospital Universitario Puerta De HierroeLung data provided via Organización Nacional de Trasplantes (ONT).Hospital Universitario La FeeLung data provided via Organización Nacional de Trasplantes (ONT).Hospital Clinic BarcelonaHospital Universitario Vall D'HebroneLung data provided via Organización Nacional de Trasplantes (ONT).Hospital Central DE AsturiasSwedencData provided via Scandiatransplant.Karolinska University Hospital, SolnaSahlgrenska University HospitalUniversity Hospital of LundTaiwanCheng-Hsin General HospitalUnited KingdomdData provided via United Kingdom Transplant Support Service Authority (UKTSSA).Great Ormand Street Hospital for ChildrenUniversity of Glasgow/Glasgow Royal InfirmaryThe Freeman HospitalHarefield HospitalWythenshawe HospitalQueen Elizabeth HospitalPapworth HospitalUnited StatesfData provided via United Network for Organ Sharing (UNOS).University of Alabama Hospital, Birmingham, ALBaptist Medical Center, Little Rock, ARArkansas Childrens Hospital, Little Rock, ARMayo Clinic Hospital, Phoenix, AZSt Josephs Hospital and Medical Center, Phoenix, AZUniversity Medical Center, University of Arizona, Tucson, AZChildrens Hospital Los Angeles, Los Angeles, CACedars-Sinai Medical Center, Los Angeles, CALoma Linda University Medical Center, Loma Linda, CACalifornia Pacific Medical Center, San Francisco, CAUCSD Medical Center, San Diego, CAUCSF Medical Center, San Francisco, CASutter Memorial Hospital, Sacramento, CASharp Memorial Hospital, San Diego, CAStanford University Medical Center, Stanford, CAUCLA Medical Center, Los Angeles, CAUSC University Hospital, Los Angeles, CAThe Children's Hospital, Aurora, COUniversity of Colorado Hospital/HSC, Aurora, COHartford Hospital, Hartford, CTYale New Haven Hosp, New Haven, CTWashington Hospital Center, Washington, DCAlfred I duPont Hospital for Children, Wilmington, DEAll Childrens Hospital, St. Petersburg, FLJackson Memorial Hospital, Miami, FLMayo Clinic Florida, Jacksonville, FLTampa General Hospital, Tampa, FLShands Hosp at University of Florida, Gainesville, FLChildren's Healthcare of Atlanta, Atlanta, GAEmory University Hospital, Atlanta, GAMed College of Georgia Hospital, Augusta, GASt. Joseph's Hospital of Atlanta, Atlanta, GAHawaii Medical Center—East, Honolulu, HIUniversity of Iowa Hospital and Clinics, Iowa City, IAAdvocate Christ Medical Center, Oak Lawn, ILChildren's Memorial Hospital, Chicago, ILLoyola University Med Center, Maywood, ILNorthwestern Memorial Hospital, Chicago, ILRush University Medical Center, Chicago, ILUniv. of Chicago Medical Center, Chicago, ILClarian Health-Methodist/IU/Riley, Indianapolis, INLutheran Hospital of Ft Wayne, Ft Wayne, INSt Vincent Hospital and Health Care Center, Indianapolis, INVia Christi Reg Medical Center, Wichita, KSJewish Hospital, Louisville, KYKosair Childrens Hospital, Louisville, KYUniversity of Kentucky Medical Center, Lexington, KYOchsner Foundation Hospital, New Orleans, LATulane Medical Center, New Orleans, LAChildren's Hospital Boston, Boston, MAMassachusetts General Hospital, Boston, MATufts Medical Center, Boston, MABrigham and Women's Hospital, Boston, MAJohns Hopkins Hospital, Baltimore, MDUniversity of Maryland Medical System, Baltimore, MDChildren's Hospital of Michigan, Detroit, MIHenry Ford Hospital, Detroit, MIUniversity of Michigan Medical Center, Ann Arbor, MIAbbott Northwestern Hospital, Minneapolis, MNSt Marys Hospital (Mayo Clinic), Rochester, MNUniversity of Minnesota Medical Center, Minneapolis, MNBarnes-Jewish Hospital, St. Louis, MOCardinal Glennon Childrens Hosp, St. Louis, MOSt. Louis Children's Hospital, St Louis, MOSt. Louis University Hospital, St Louis, MOSt. Lukes Hospital of Kansas City, Kansas City, MOUniversity of Mississippi Medical Center, Jackson, MSNorth Carolina Baptist Hospital, Winston Salem, NCCarolinas Med Ctr, Charlotte, NCDuke University Medical Center, Durham, NCUNC Hospitals, Chapel Hill, NCBryanLGH Medical Center East, Lincoln, NEThe Nebraska Medical Center, Omaha, NENewark Beth Israel Medical Center, Newark, NJRobert Wood Johnson University Hospital, New Brunswick, NJAlbany Medical Center Hospital, Albany, NYThe Presbyterian Hospital in New York City, New York, NYStrong Memorial Hospital, Rochester, NYMontefiore Medical Center, Bronx, NYMount Sinai Medical Center, New York, NYWestchester Medical Center, Valhalla, NYCleveland Clinic Foundation, Cleveland, OHNationwide Children's Hospital, Columbus, OHChildren's Hospital Medical Center, Cincinnati, OHOhio State University Medical Center, Columbus, OHUniversity of Cincinnati Medical Center, Cincinnati, OHUniversity Hospital of Cleveland, Cleveland, OHIntegris Baptist Medical Center, Oklahoma City, OKSaint Francis Hospital, Tulsa, OKProvidence Portland Medical Center, Portland, OROregon Health and Science University, Portland, ORAllegheny General Hospital, Pittsburgh, PAChildren's Hospital of Pittsburgh, Pittsburgh, PAChildrens Hospital of Philadelphia, Philadelphia, PAPenn State Milton S. Hershey Medical Center, Hershey, PAHahnemann University Hospital, Philadelphia, PAThe Lankenau Hospital, Wynnewood, PAUniversity of Pittsburgh Medical Center, Pittsburgh, PAThomas Jefferson University Hospital, Philadelphia, PATemple University Hospital, Philadelphia, PAThe Hospital of the University of Pennsylvania, Philadelphia, PACardiovascular Center of Puerto Rico, San Juan, PRMedical University of South Carolina, Charleston, SCBaptist Memorial Hospital, Memphis, TNSt. Thomas Hospital, Nashville, TNVanderbilt University Medical Center, Nashville, TNUniversity Hospital, San Antonio, TXChildren's Medical Center of Dallas, Dallas, TXSeton Medical Center, Austin, TXMedical City Dallas Hospital, Dallas, TXSt Luke's Episcopal Hospital, Houston, TXMethodist Specialty & Transplant Hospital, San Antonio, TXUniversity of Texas Medical Branch, Galveston, TXThe Methodist Hospital, Houston, TXChristus Santa Rosa Medical Center, San Antonio, TXUniversity Hospital—St. Paul, Dallas, TXTexas Children's Hospital, Houston, TXBaylor University Medical Center, Dallas, TXIntermountain Medical Center, Murray, UTUniversity of Utah Medical Center, Salt Lake City, UTPrimary Childrens Medical Center, Salt Lake City, UTInova Fairfax Hospital, Falls Church, VAMCV Hospitals, Richmond, VAMcGuire VA Medical Center, Richmond, VASentara Norfolk General Hospital, Norfolk, VAUniversity of Virginia HSC, Charlottesville, VAChildren's Hospital & Reg Medical Center, Seattle, WASacred Heart Medical Center, Spokane, WAUniversity of Washington Medical Center, Seattle, WAChildrens Hospital of Wisconsin, Milwaukee, WIFroedtert Memorial Lutheran Hospital, Milwaukee, WIAurora St. Luke's Medical Center, Milwaukee, WIUniversity of Wisconsin Hospital and Clinics, Madison, WIa Data provided via Australia and New Zealand Cardiothoracic Transplant Registry (ANZCOTR).b Data provided via Eurotransplant (ET).c Data provided via Scandiatransplant.d Data provided via United Kingdom Transplant Support Service Authority (UKTSSA).e Lung data provided via Organización Nacional de Trasplantes (ONT).f Data provided via United Network for Organ Sharing (UNOS). 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