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EpidemIBD: rationale and design of a large-scale epidemiological study of inflammatory bowel disease in Spain

2019; SAGE Publishing; Volume: 12; Linguagem: Inglês

10.1177/1756284819847034

1756-2848

María Chaparro, Manuel Barreiro‐de Acosta, J M Benítez, José Luis Cabriada, María José Casanova, Daniel Ceballos, María Esteve, H Fernández, Daniel Ginard, Fernando Gomollón, R Lorente, Pilar Nos, Sabino Riestra, Montserrat Rivero, Pilar Robledo, Cristina Rodríguez, Beatriz Sicilia, Emilio Torrella, A Garre, Esther García‐Esquinas, Fernando Rodríguez‐Artalejo, Javier P. Gisbert, A. Abraldes, J M Benítez, M.R. Calderón, Raquel Camargo, Álvaro Hernández-Martínez, Eva Iglesias, E Leo, Sandra Soro Marín, A. Monrobel, A Núñez, Natalia Rueda Ruiz, M. Tejada, Yolanda Torres, María José Fernández Alcalá, Erika Alfambra, Yolanda Ber, Fernando Gomollón, A. Mir, Miguel Montoro, J.M. Nerín, E. Peña, Raquel Vicente, José María Duque, Ruth de Francisco, Alejo Mancebo Mata, Susana Martínez González, Isabel Pérez‐Martínez, Sabino Riestra, Pilar Varela, Inmaculada Alonso Abreu, Daniel Ceballos, Nicole M. Cruz, Ernesto Guerra-Farfán, Alejandro Hernández-Camba, L. Kolle, José Miguel Marrero, Nemesio M. Pérez, Marta Soler, M Vela, José Luis Fernández Forcelledo, Montserrat Rivero, R Lorente, Cristina Verdejo, Mónica Castellanos Montealegre, Alfredo J. Lucendo, Óscar Roncero, Abdel Bouhmidi, Daniel Hervías, Lara Arias García, Jesús Barrio, Luís Fernández-Salazar, Paola Fradejas, A.M. Fuentes, Luis Hernández, C. López, Laura Mata, Carmela Piñero, Beatriz Sicilia, M Sierra, Mónica Vásquez, Montserrat Aceituno, Mirandeli Bautista, Xavier Calvet, María Esteve, Montserrat Aceituno, Jordi Valero, Jordi Gordillo, Carlos Ledezma, Laia Lluis, Francisco J. Martínez-Cerezo, M Menacho, M. Navarro Llavat, Sara Yukie Rodriguez, M Sàbat, Manuela Josefa Sampedro, Eduardo Sainz, Eva Sesé, Andrea Silva, Sandra Torra, Leyanira Torrealba, C. Vilà, Marta Ágreda Chinea, A. Algaba, F. Bermejo, I. Blázquez, Orencio Bosch, Belén Botella, María José Casanova, Carlos Castańo-Milla, María Chaparro, R. de Lucas, Mercedes Domínguez-Antonaya, María G. Donday, A. Durán, María Luisa Galve, L. Nieto García, A Garre, Javier P. Gisbert, Iván Guerra, Pilar Jiménez, Beatriz López-Cauce, A. López-Sanromán, P. López, Ignacio Marín‐Jiménez, María Dolores Martín‐Arranz, Adrián G. McNicholl, Jorge Olmos, Verónica Opio, J L Pérez-Calle, Rocío Plaza, Ángel Ponferrada, Elena San Miguel, E. Sánchez, Isabel Vera-Mendoza, Mariam Aguas, M F García-Sepulcre, A. Gutiérrez, B. Herreros, José María Huguet, Nuria Jiménez, Nuria Maroto, L. Martí, Miguel Mínguez, Margarita Muñoz, Pablo Navarro, Pilar Nos, John Jairo Ramírez, M. Roldán, Liliana Pozzati, Patricia Robledo, Manuel Barreiro‐de Acosta, Iria Bastón‐Rey, Amalia Carmona, Daniel Carpio, Esmeralda Gracián-Castro, Berta Crespo, María Teresa Diz-Lois, Ana Echarri, J.D. Fernández-de Castro, E Fernández, R Ferreiro-Iglesias, Vicent Hernández, A. López, Pedro María Pérez, M Ruiz, Pablo Vega, Margalida Calafat, Daniel Ginard, Eduardo Iyo, Maria Teresa Novella, José Reyes, Cristina Rodríguez, Virginia Matallana Royo, Amparo Sapiña, Henry A. Fernández, M. Fraile, Alberto García-García, Berta Lapeña, S. Revuelta, Rebeca Irisarri, M Kutz, Óscar Nantes, Cristina Rodríguez, S Rubio, M Vicuña, H. Alonso, José Luis Cabriada, Agustín Castiella, I. Galdona, Ainara Maíz, A.I. Muñagorri Santos, Naiara Muro, Javier Ortíz, Nerea Otegui, Iago Rodríguez‐Lago, Kateřina Špičáková, Eva Zapata, Leire Zubiaurre‐Elorza, José Manuel Castillo-Espinosa, M. C. Martínez Bonil, Cristina Martínez Pascual, Isabel Nicolás, E. Torrella,

Diagnosis and treatment of tuberculosis

Inflammatory bowel disease (IBD) is associated with a considerable burden to the patient and society. However, current data on IBD incidence and burden are limited because of the paucity of nationwide epidemiological studies, heterogeneous designs, and a low number of participating centers and sample size. The EpidemIBD study is a large-scale investigation to provide an accurate assessment of the incidence of IBD in Spain, as well as treatment patterns and outcomes.This multicenter, population-based incidence cohort study included patients aged >18 years with IBD (Crohn's disease, ulcerative colitis, or unclassified IBD) diagnosed during 2017 in 108 hospitals in Spain, covering 50% of the Spanish population. Each participating patient will attend 10 clinic visits during 5 years of follow up. Demographic data, IBD characteristics and family history, complications, treatments, surgeries, and hospital admissions will be recorded.The EpidemIBD study is the first large-scale nationwide study to investigate the incidence of IBD in Spain. Enrollment is now completed and 3627 patients are currently being followed up.The study has been designed to overcome many of the limitations of previous European studies into IBD incidence by prospectively recruiting a large number of patients from all regions of Spain. In addition to epidemiological information about the burden of IBD, the 5-year follow-up period will also provide information on treatment patterns, and the natural history and financial burden of IBD.