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El registro ENEIDA (Estudio Nacional en Enfermedad Inflamatoria intestinal sobre Determinantes genéticos y Ambientales) de GETECCU: diseño, monitorización y funciones

2020; Elsevier BV; Volume: 43; Issue: 9 Linguagem: Inglês

10.1016/j.gastrohep.2020.05.007

1578-9519

Yamile Zabana, Julián Panés, Pilar Nos, Fernando Gomollón, María Esteve, Valle García–Sánchez, Javier P. Gisbert, Manuel Barreiro‐de Acosta, Eugeni Domènech,

Helicobacter pylori-related gastroenterology studies

The ENEIDA registry, promoted by the Spanish Working Group on Crohn's Disease and Ulcerative Colitis (GETECCU), was created in 2005 by a group of gastroenterologists interested in improving the management of patients with inflammatory bowel disease. The main objectives of the registry were to facilitate the collection of clinical data of interest for clinical care practice, as well as to carry out collaborative studies using clinical data and biological samples. In its 15 years of existence, ENEIDA has evolved in many aspects, from its content or technological support to the number of participating centres, to become one of the reference registries for the study and care of patients with inflammatory bowel disease, with a continuous and high quality scientific production that has positioned it as an example of collaborative scientific exploitation at an international level. This article reviews the objectives, design, structural characteristics, monitoring and scientific exploitation of the ENEIDA registry.