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Optimizing the measurement of health‐related quality of life in adolescents and young adults with cancer

2020; Wiley; Volume: 126; Issue: 22 Linguagem: Inglês

10.1002/cncr.33155

1097-0142

John M. Salsman, Suzanne C. Danhauer, Justin B. Moore, Mollie Rose Canzona, David Victorson, Brad Zebrack, Bryce B. Reeve,

Family Support in Illness

To date, the health‐related quality of life experiences of adolescents and young adults (AYA) with cancer have been inconsistently and incompletely captured by existing patient‐reported outcome (PRO) measures. The National Institutes of Health Patient‐Reported Outcomes Measurement Information System (PROMIS) represents the state of the art for measurement science of PROs and provides an optimal approach for addressing these measurement challenges and catalyzing future patient‐centered research in AYA oncology.