Portal de Periódicos da CAPES

Participant understanding of informed consent in a multidisease community-based health screening and biobank platform in rural South Africa

2020; Oxford University Press; Volume: 12; Issue: 6 Linguagem: Inglês

10.1093/inthealth/ihaa072

1876-3413

Nothando Ngwenya, Manono Luthuli, Resign Gunda, Ntombizonke A. Gumede, Oluwafemi Adeagbo, Busisiwe Nkosi, Dickman Gareta, Olivier Koole, Mark J. Siedner, Emily Wong, Janet Seeley, Ashmika Surujdeen, Hlolisile Khumalo, Ngcebo Mhlongo, Sanah Bucibo, Sibahle Gumbi, Lindani Mthembu, Seneme Mchunu, Phakamani Mkhwanazi, Anele Mkhwanazi, Mkhwanazi Ntombiyenhlanhla, Rose Myeni, Zikhali Mandlakayise, Fezeka Mfeka, Hlobisile Gumede, Nozipho Mbonambi, Hloniphile Ngubane, Simelane Thokozani, Bongumenzi Ndlovu, Talente Ntimbane, Mbali Mbuyisa, Xolani Mkhize, Melusi Sibiya, Ntombiyenkosi Ntombela, Mandisi Dlamini, Thengokwakhe Nkosi, Sibusiso Mkhwanazi, Skhumbuzo Mthombeni, Hlobisile Chonco, Hlengiwe Dlamini, Doctar Mlambo, Mzimela Nonhlanhla, Zinhle Buthelezi, Mpumelelo Steto, Sibusiso Mhlongo, Bongani Magwaza, Siyabonga Nsibande, Nombuyiselo Zondi, Khanyisani Buthelezi, Nsibande Sibusiso, Nonceba Mfeka, Ayanda Zungu, Hlobisile Gumede, Nonhlanhla Mfekayi, Smangaliso Zulu, Mzamo Buthelezi, Senzeni Mkhwanazi, Mlungisi Dube, Welcome Petros Mthembu, Sphiwe Clement Mthembu, Zinhle Mthembu, Thokozani Bhengu, Sandile Mthembu, Phumelele Mthethwa, Zamashandu Mbatha, Ashmika Surujdeen, Hlolisile Khumalo, Ngcebo Mhlongo, Sanah Bucibo, Sibahle Gumbi, Lindani Mthembu, Seneme Mchunu, Phakamani Mkhwanazi, Anele Mkhwanazi, Mkhwanazi Ntombiyenhlanhla, Rose Myeni, Zikhali Mandlakayise, Fezeka Mfeka, Hlobisile Gumede, Nozipho Mbonambi, Hloniphile Ngubane, Simelane Thokozani, Bongumenzi Ndlovu, Talente Ntimbane, Mbali Mbuyisa, Xolani Mkhize, Melusi Sibiya, Ntombiyenkosi Ntombela, Mandisi Dlamini, Thengokwakhe Nkosi, Sibusiso Mkhwanazi, Skhumbuzo Mthombeni, Hlobisile Chonco, Hlengiwe Dlamini, Doctar Mlambo, Mzimela Nonhlanhla, Zinhle Buthelezi, Mpumelelo Steto, Sibusiso Mhlongo, Bongani Magwaza, Siyabonga Nsibande, Nombuyiselo Zondi, Khanyisani Buthelezi, Nsibande Sibusiso, Nonceba Mfeka, Ayanda Zungu, Hlobisile Gumede, Nonhlanhla Mfekayi, Smangaliso Zulu, Mzamo Buthelezi, Senzeni Mkhwanazi, Mlungisi Dube, Welcome Petros Mthembu, Sphiwe Clement Mthembu, Zinhle Mthembu, Thokozani Bhengu, Sandile Mthembu, Phumelele Mthethwa, Zamashandu Mbatha,

Health Systems, Economic Evaluations, Quality of Life

In low- and middle-income settings, obtaining informed consent for biobanking may be complicated by socio-economic vulnerability and context-specific power dynamics. We explored participants experiences and perceptions of the research objectives in a community-based multidisease screening and biospecimen collection platform in rural KwaZulu-Natal, South Africa.