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A qualitative study of family members' experiences of their loved one developing dementia and their subsequent placement in a nursing home

2021; Wiley; Volume: 29; Issue: 5 Linguagem: Inglês

10.1111/jonm.13267

1365-2834

Zvonka Fekonja, Sergej Kmetec, Barbara Novak, Brendan McCormack, Nataša Mlinar Reljić,

Palliative Care and End-of-Life Issues

Journal of Nursing ManagementVolume 29, Issue 5 p. 1284-1292 ORIGINAL ARTICLE A qualitative study of family members' experiences of their loved one developing dementia and their subsequent placement in a nursing home Zvonka Fekonja BSc, MN, RN, Zvonka Fekonja BSc, MN, RN PhD Candidate, Teaching Assistant orcid.org/0000-0002-4224-8843 Faculty of Health Science, University of Maribor, Maribor, SloveniaSearch for more papers by this authorSergej Kmetec BSc, MN, RN, Corresponding Author Sergej Kmetec BSc, MN, RN PhD Candidate, Teaching Assistant sergej.kmetec1@um.si orcid.org/0000-0002-5601-0940 Faculty of Health Science, University of Maribor, Maribor, Slovenia Correspondence Sergej Kmetec, Faculty of Health Sciences, University of Maribor, Žitna ulica 15, 2000 Maribor, Slovenia. Email: sergej.kmetec1@um.siSearch for more papers by this authorBarbara Novak BSc, RN, Barbara Novak BSc, RN Registered Nurse General Hospital Celje, Celje, SloveniaSearch for more papers by this authorBrendan McCormack RGN, RMN, PhD, Brendan McCormack RGN, RMN, PhD Professor orcid.org/0000-0001-8525-8905 Division of Nursing, Queen Margaret University Edinburgh, Edinburgh, UKSearch for more papers by this authorNataša Mlinar Reljić BSc, MN, RN, Nataša Mlinar Reljić BSc, MN, RN PhD Candidate, Senior Lecturer orcid.org/0000-0003-1148-0831 Faculty of Health Science, University of Maribor, Maribor, SloveniaSearch for more papers by this author Zvonka Fekonja BSc, MN, RN, Zvonka Fekonja BSc, MN, RN PhD Candidate, Teaching Assistant orcid.org/0000-0002-4224-8843 Faculty of Health Science, University of Maribor, Maribor, SloveniaSearch for more papers by this authorSergej Kmetec BSc, MN, RN, Corresponding Author Sergej Kmetec BSc, MN, RN PhD Candidate, Teaching Assistant sergej.kmetec1@um.si orcid.org/0000-0002-5601-0940 Faculty of Health Science, University of Maribor, Maribor, Slovenia Correspondence Sergej Kmetec, Faculty of Health Sciences, University of Maribor, Žitna ulica 15, 2000 Maribor, Slovenia. Email: sergej.kmetec1@um.siSearch for more papers by this authorBarbara Novak BSc, RN, Barbara Novak BSc, RN Registered Nurse General Hospital Celje, Celje, SloveniaSearch for more papers by this authorBrendan McCormack RGN, RMN, PhD, Brendan McCormack RGN, RMN, PhD Professor orcid.org/0000-0001-8525-8905 Division of Nursing, Queen Margaret University Edinburgh, Edinburgh, UKSearch for more papers by this authorNataša Mlinar Reljić BSc, MN, RN, Nataša Mlinar Reljić BSc, MN, RN PhD Candidate, Senior Lecturer orcid.org/0000-0003-1148-0831 Faculty of Health Science, University of Maribor, Maribor, SloveniaSearch for more papers by this author First published: 23 January 2021 https://doi.org/10.1111/jonm.13267Citations: 1Read the full textAboutPDF ToolsRequest permissionExport citationAdd to favoritesTrack citation ShareShare Give accessShare full text accessShare full-text accessPlease review our Terms and Conditions of Use and check box below to share full-text version of article.I have read and accept the Wiley Online Library Terms and Conditions of UseShareable LinkUse the link below to share a full-text version of this article with your friends and colleagues. Learn more.Copy URL Share a linkShare onFacebookTwitterLinked InRedditWechat Abstract Aim To investigate the family members' experiences with receiving help and support while their loved one develops dementia and their subsequent placement in nursing homes. Background As the dementia disease progresses, some family members will struggle with the option of nursing home placement. This situation can precipitate feelings of anger, disappointment and guilt, all of which can be overwhelming. Methods A qualitative descriptive study with in-depth interviews (n = 19) was carried out in several nursing homes of Slovenia's North Eastern Region. Results Inductive thematic analysis identified two main themes: (i) developing the diagnosis and (ii) accommodation process. Family members noticed the progressive behavioural changes in their loved ones. While they were searching for help at the primary health care level, they experienced a lack of help and support. Conclusions When family members detect behavioural changes in their loved ones, the primary health care team should establish an early diagnosis of dementia and provide adequate decision-making support. Implications for Nursing Management The findings are useful to prepare guidance for a family member to inform them of the types of support available and from which associations and organisations. To achieve adequate management support, primary health care teams need to be aware of family member experiences. Open Research DATA AVAILABILITY STATEMENT Additional data from this study are not publicly available in order to maintain the anonymity of participants but can be provided on request. Citing Literature Supporting Information Filename Description jonm13267-sup-0001-AppendixS1.docWord document, 54 KB Appendix S1 Please note: The publisher is not responsible for the content or functionality of any supporting information supplied by the authors. Any queries (other than missing content) should be directed to the corresponding author for the article. Volume29, Issue5July 2021Pages 1284-1292 RelatedInformation