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European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE): Expert Consensus on the Diagnosis, Service Provision, and Care of People with ME/CFS in Europe

2021; Multidisciplinary Digital Publishing Institute; Volume: 57; Issue: 5 Linguagem: Inglês

10.3390/medicina57050510

1648-9144

Luís Nacul, François‐Jérôme Authier, Carmen Scheibenbogen, Lorenzo Lorusso, Ingrid B. Helland, José Alegre Martín, Carmen Adella Sîrbu, Anne Marit Mengshoel, Olli Polo, Uta Behrends, Henrik Nielsen, Patricia Grabowski, Slobodan Sekulić, Nuno Sepúlveda, Fernando Estévez‐López, Paweł Zalewski, Derek Pheby, Jesús Castro‐Marrero, Giorgos K. Sakkas, Enrica Capelli, Ivan Brundsdlund, John Cullinan, Angelika Krūmiņa, Jonas Bergquist, Modra Murovska, Ruud C. W. Vermuelen, Eliana Lacerda,

Genetic Neurodegenerative Diseases

Designed by a group of ME/CFS researchers and health professionals, the European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE) has received funding from the European Cooperation in Science and Technology (COST)-COST action 15111-from 2016 to 2020. The main goal of the Cost Action was to assess the existing knowledge and experience on health care delivery for people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in European countries, and to enhance coordinated research and health care provision in this field. We report our findings and make recommendations for clinical diagnosis, health services and care for people with ME/CFS in Europe, as prepared by the group of clinicians and researchers from 22 countries and 55 European health professionals and researchers, who have been informed by people with ME/CFS.