International federation of genomic medicine databases using GA4GH standards
2021; Elsevier BV; Volume: 1; Issue: 2 Linguagem: Inglês
10.1016/j.xgen.2021.100032
ISSN2666-979X
AutoresAdrian Thorogood, Heidi L. Rehm, Peter Goodhand, Angela Page, Yann Joly, Michael Baudis, Jordi Rambla, Arcadi Navarro, Tommi Nyrönen, Mikael Lindén, Edward S. Dove, Marc Fiume, Michael Brudno, Melissa Cline, Ewan Birney,
Tópico(s)Ethics in Clinical Research
ResumoWe promote a shared vision and guide for how and when to federate genomic and health-related data sharing, enabling connections and insights across independent, secure databases. The GA4GH encourages a federated approach wherein data providers have the mandate and resources to share, but where data cannot move for legal or technical reasons. We recommend a federated approach to connect national genomics initiatives into a global network and precision medicine resource.
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