The Schizophrenia Care Management Program for Family Caregivers of Chinese Patients With Schizophrenia
2010; American Psychiatric Association; Volume: 61; Issue: 3 Linguagem: Inglês
10.1176/appi.ps.61.3.317
ISSN1557-9700
Autores Tópico(s)Mental Health Treatment and Access
ResumoBack to table of contents Previous article Next article Brief ReportFull AccessThe Schizophrenia Care Management Program for Family Caregivers of Chinese Patients With SchizophreniaWai Tong Chien Ph.D., R.M.N.Isabella Y. M. Lee M.Phil., R.N.Wai Tong Chien Ph.D., R.M.N.Search for more papers by this authorIsabella Y. M. Lee M.Phil., R.N.Search for more papers by this authorPublished Online:1 Mar 2010https://doi.org/10.1176/ps.2010.61.3.317AboutSectionsView articleSupplemental MaterialPDF/EPUB ToolsAdd to favoritesDownload CitationsTrack Citations ShareShare onFacebookTwitterLinked InEmail View article It is recognized that caring for someone with schizophrenia can have adverse psychosocial effects on caregivers. Therefore, various psychosocial interventions have been implemented, and studies have provided preliminary evidence of their effectiveness in improving family caregivers' mental health and reducing patients' relapse and institutionalization rates ( 1 ). Recent controlled trials in Western and Asian countries have indicated that the effects that different models of family intervention have on patients' and their families' psychosocial health conditions are inconsistent and inconclusive, apart from showing improvements in the patients' relapse rate and medication compliance ( 2 , 3 , 4 ). Other limitations of family intervention studies are the paucity of controlled trials of needs-based interventions with a broad range of outcome measures, poor study power and high attrition rates, and insufficient interdisciplinary collaboration ( 2 , 4 ). A few integrated multidisciplinary and multicomponent educational programs, such as a family psychoeducation group program in Hong Kong ( 5 ) and a needs-based psychosocial intervention in the United Kingdom ( 6 ), reported significant effects on families' management of patients' problem behaviors and families' general health. These programs consist of multiple supportive strategies, such as schizophrenia care education, stress management, and problem-solving skills. However, only a few family intervention studies have been conducted in Asian populations, where great importance is attached to intimate interpersonal relationships and collective behaviors among family members ( 1 ). To address gaps in knowledge about the quality of family interventions, this trial was designed to test the effects of an interdisciplinary, needs-based schizophrenia care management program (SCMP) for family caregivers of Chinese patients with schizophrenia on patients' and families' psychosocial health and functioning. Methods The study was a randomized controlled trial that used a repeated-measures design. It was undertaken between January 2007 and December 2008 and was approved by the Clinical Research Ethics Committee of the New Territories East Cluster of Hospital Authority. A total of 500 Chinese family members of patients with schizophrenia who attended any of three regional outpatient clinics in Hong Kong were eligible to participate in the study, and 200 (40%) patient-caregiver dyads agreed to participate. Of these, 92 (46%) were randomly selected to take part. Based on previous studies of family intervention ( 4 , 5 ), this sample size was required to detect any significant difference between the groups at a 5% significance level with a power of 90%, and the size would allow 15% attrition ( 7 ). Patient-caregiver dyads were eligible for the study. Caregivers were eligible for the study if they were 18 years or older, if they were the main caregiver for the relative with schizophrenia, and if they lived with the relative with schizophrenia. Patients had to be diagnosed as having schizophrenia according to DSM-IV criteria and be 18 years or older. Caregivers who had mental illness themselves or cared for more than one relative with mental illness were excluded. After written consent of caregivers and patients had been obtained following a full explanation of the study, the participants were randomly assigned to the usual care or the SCMP group. Persons in the SCMP received usual care (routine psychiatric outpatient and family services) along with enrollment in SCMP. The SCMP was composed of 14 two-hour sessions for each individual patient-caregiver dyad every other week. The program was based on the family psychoeducation and support programs developed by Chien and colleagues ( 1 , 5 ) and McFarlane ( 3 ) and consisted of six stages: orientation and engagement, educational workshop about schizophrenia care, caregiving role and therapeutic communication, experience sharing and problem solving, community support resources, and termination of the program. Each patient-caregiver dyad in the SCMP group was given the Educational Needs Questionnaire ( 5 , 8 ), and a multidisciplinary committee, including a psychiatrist, a social worker, a case (nurse) manager from each clinic, and the researchers, selected the individualized intervention objectives from the responses to the questionnaire. The committee also designed an information and psychosocial support system for families linking case managers and outpatient services, health professionals, and referrals. Each patient-caregiver dyad was assigned to one case manager who received three days of formal training from the researchers. The case managers coordinated all levels of care for the family members with schizophrenia and, together with the clinic staff and family caregivers, prioritized problem areas and formulated a multicomponent program on schizophrenia care (for example, problem solving, value orientation, and education). The program adopted a few strategies to address traditional Chinese cultural tenets. The first stage (orientation and engagement) focused on understanding strong interdependence, collective actions and decisions about family issues, acceptance of roles, and filial obligation of caregiving. In the second and third stage (educational workshop, caregiving role, and therapeutic communication), resolution of conflicts, respect for elders, and other traditional Chinese beliefs and values were emphasized in learning about home management and effective communication among family members. In the fourth stage (experience sharing and problem solving), family caregivers were guided to discuss their situations in meeting patients' demands. Because Chinese caregivers tended to prefer more hands-on and practical experiences rather than didactic teaching and open expression of their feelings, they were also invited to conduct behavior rehearsals of coping strategies and skills in resolving conflicts within the family. Guided by a study of the psychoeducation group program in this population in 2007 ( 5 ), the SCMP adopted an individualized case management approach of family care. The content of the program was designed according to the preference and perceived needs of patient-caregiver dyads, and the case managers put much emphasis on addressing their cultural issues in family caregiving role, effective communication, and resolving conflicts, as well as hands-on practical experiences. The number of sessions had been reduced from 18 to 14 two-hour sessions; however, more individualized care had been provided by the case managers in the home setting. The usual care group received routine psychiatric outpatient and family services only. These services consisted of monthly medical consultation and treatment planning by the attending psychiatrist, nursing advice on community health care services, and brief family education (two group sessions) on patients' illness by psychiatric nurses and social workers. All patients and their family members were invited by the nurse in the clinic to participate in all of the services. The services used were freely chosen by the patient-caregiver dyads. One researcher who was blind to the group assignment administered the pretest before the patient-caregiver dyads were randomly assigned to groups and administered two posttests at one and 15 months after the intervention. Family functioning, social support, and expressed emotion were rated with the Family Assessment Device ( 9 ), the six-item Social Support Questionnaire ( 10 ), and the Level of Expressed Emotion Scale ( 11 ), respectively. The patient symptoms and functioning were assessed with the Brief Psychiatric Rating Scale (BPRS) ( 12 ) and the Specific Level of Functioning Scale ( 13 ), respectively. The Chinese versions of these instruments were validated, indicating satisfactory reliability and validity ( 11 , 14 ). The patients' average number and length of rehospitalizations in the previous six months were also calculated. Multivariate analysis of variance (MANOVA) was performed for the outcome variables to determine the treatment effects (group × time), followed by post-hoc Tukey's honestly significant difference analysis (that is, protected type I error). Data were analyzed on an intention-to-treat basis that maintained the advantages of random allocation ( 1 , 2 ). Participants who did not complete the program remained in the study group and were asked to complete the outcome measures at the posttests, and these data were included in the data analysis. Results Forty-four of the SCMP patient-caregiver dyads (96%) completed the program; only two dyads in the SCMP (4%) and one in the control group (2%) dropped out before completing the posttests. There were no significant sociodemographic or clinical differences between the two study groups and the 408 persons who did not participate in the study. [A table showing the sociodemographic and clinical characteristics of the two study groups and persons who did not participate in the study is available as an online supplement at ps.psychiatryonline.org .] There were also no significant differences on the baseline psychosocial measurement scores between the two study groups when analyzed by Student's t test. There was a statistically significant difference between the two groups on the combined dependent variables (F=5.1, df=6 and 90, p=.003; Wilks' λ = .93, partial η2 =.20). As shown in Table 1 , the results of MANOVA for the outcome measures indicated that there were statistically significant differences between the two groups regarding improvement in families' and patients' functioning, caregivers' social support, and number and length of rehospitalizations at the two posttests. The post-hoc comparisons indicated that the SCMP participants' family functioning and social support improved significantly at the two posttests but that the patients' functioning and number and length of rehospitalizations in this program improved significantly only at the 15-month follow-up. Table 1 Pretest and posttest ratings of various measures by patients with schizophrenia in Hong Kong and their caregivers, by care assignmentTable 1 Pretest and posttest ratings of various measures by patients with schizophrenia in Hong Kong and their caregivers, by care assignmentEnlarge tableDiscussion The findings provide preliminary support for the efficacy of the SCMP in a Chinese population to improve families' and patients' functioning and rates of patients' illness relapse, as suggested in previous Western studies ( 6 , 15 ). This program, which addressed the specific cultural and familial needs of those who care for patients with schizophrenia (for example, enhancing the mutual respect and interdependence of patients and caregivers and enhancing respect and appreciation of the caregiving role by every family member), can improve the psychosocial health condition of the whole family and decrease patients' risk of rehospitalizations over a 15-month follow-up period. Only a few studies have previously demonstrated significant long-term effects (that is, more than one year) of a family group program on both the patients' and families' psychosocial functioning ( 2 , 4 ). The findings of the study presented here clearly affirm the positive effects of a multidisciplinary schizophrenia management program designed to enhance family-oriented care. In addition, it is noteworthy that the caregivers in the SCMP reported a significant improvement in their family functioning and social support. These improvements might be a result of education, experience sharing, and skills training in the program, all of which are considered therapeutic factors in previous family studies ( 3 , 5 , 15 ). In return, improved patient functioning and fewer illness relapses would likely result in better family functioning and health. It is significant that the patients' mental condition (BPRS scores) in the two groups remained stable over the 15-month follow-up. This stability could be the result of choice of medication or patients' medication adherence; however, medication adherence was not investigated in this study and would thus provide an important subject for further research. The late onset of illness among the patients (most aged 26–35 years) could indicate that Chinese families might hesitate and thus delay bringing their relative with mental illness in for treatment because of the perceived social stigma of mental illness in the community ( 4 ). However, the small size of the study group limits analysis of the mediating variables to identify the therapeutic mechanisms of this family program. Usual psychiatric care was chosen as the control condition; as such, the Hawthorne effect cannot be excluded. ConclusionsThis program that was developed for family members of Chinese patients with schizophrenia and was delivered in three outpatient clinics with the multidisciplinary team was more effective than usual care. It is important to continue to implement this family-oriented intervention and to validate its long-term effects by comparing it with other family programs and by using larger samples of persons of diverse sociocultural backgrounds or other psychiatric disorders.Acknowledgments and disclosuresThis research was supported by departmental research grant 2006-07 from the School of Nursing at the Chinese University of Hong Kong. The authors thank the outpatient clinics and their staff for their assistance in the recruitment of participants and in data collection.The authors report no competing interests.Dr. Chien is affiliated with the School of Nursing, Faculty of Health and Social Sciences, Hong Kong Polytechnic University, Hung Hom, Kowloon, Hong Kong (e-mail: [email protected]). Ms. Lee is with the Endoscopic and Diagnostic Unit, Tuen Mun Hospital, Tuen Mun, Hong Kong.References1. Chien WT, Thompson DR, Norman I: Evaluation of a peer-led mutual support group for Chinese families of people with schizophrenia. American Journal of Community Psychology 42:122–134, 2008Google Scholar2. Pharoah FM, Mari JJ, Streiner D: Family intervention for schizophrenia, in Cochrane Systematic Reviews, Issue 3, 2001. Oxford, Cochrane Library, 2001Google Scholar3. McFarlane WR: Multifamily Groups in the Treatment of Severe Psychiatric Disorders. New York, Guilford, 2002Google Scholar4. Chien, WT, Norman I: The effectiveness and active ingredients of mutual support groups for family caregivers of people with psychotic disorders: a literature review. International Journal of Nursing Studies 46:1604–1623, 2009Google Scholar5. Chien WT, Wong KF: The family psychoeducation group program for Chinese people with schizophrenia in Hong Kong. Psychiatric Services 58:1003–1006, 2007Google Scholar6. Barrowclough C, Tarrier N, Lewis S, et al: Randomized controlled effectiveness trial of a needs-based psychosocial intervention service for carers of people with schizophrenia. British Journal of Psychiatry 174:505–511, 1999Google Scholar7. Cohen J: A power primer. Psychological Bulletin 112:155–159, 1992Google Scholar8. Chien WT, Norman I: Educational needs of families caring for Chinese patients with schizophrenia. Journal of Advanced Nursing 44:490–498, 2003Google Scholar9. Epstein NB, Baldwin LM, Bishop DS: The McMaster Family Assessment Device. Journal of Marital and Family Therapy 9:171–180, 1983Google Scholar10. Sarason IG, Sarason BR, Shearin EN, et al: A brief measure of social support: practical and theoretical implications. Journal of Social and Personal Relationship 4:497–510, 1987Google Scholar11. Chien WT, Chan SWC: Testing the psychometric properties of a Chinese version of the Level of Expressed Emotion Scale. Research in Nursing and Health 32:59–70, 2009Google Scholar12. Overall JE, Gorham DR: The Brief Psychiatric Rating Scale. Psychiatric Reports 10:799–812, 1962Google Scholar13. Schneider LC, Struening EL: SLOF: a behavioral rating scale for assessing the mentally ill. Social Work Research 19:9–21, 1983Google Scholar14. Chien WT, Chan SWC, Thompson DR: Effects of a mutual support group for families of Chinese people with schizophrenia: 18-month follow-up. British Journal of Psychiatry 189:41–49, 2006Google Scholar15. Magliano L, Fiorillo A, Malangone C, et al: Implementing psycho-educational interventions in Italy for patients with schizophrenia and their families. Psychiatric Services 57:266–269, 2006Google Scholar FiguresReferencesCited byDetailsCited byPromoting Psychosocial Health of Family Caregivers of Patients with Chronic Mental Disorders: A Review of Challenges and StrategiesChonnam Medical Journal, Vol. 59, No. 1A scoping review of Chinese families caring for a relative with mental illness21 August 2021 | Journal of Ethnic & Cultural Diversity in Social Work, Vol. 31, No. 1Mindfulness-Based Interventions in PsychosisThe Effect of Emotion Regulation Training on Stress, Anxiety, and Depression in Family Caregivers of Patients with Schizophrenia: A Randomized Controlled Trial13 February 2020 | Community Mental Health Journal, Vol. 56, No. 6Issues in Mental Health Nursing, Vol. 40, No. 6Schizophrenia Research, Vol. 195Psychological Medicine, Vol. 48, No. 5Health Services and Delivery Research, Vol. 6, No. 32Nordic Journal of Psychiatry, Vol. 70, No. 3Psychoeducation for siblings of people with severe mental illness8 May 2015 | Cochrane Database of Systematic Reviews, Vol. 58RéférencesFamily Process, Vol. 54, No. 1BMC Psychiatry, Vol. 15, No. 1BMC Psychiatry, Vol. 14, No. 1An RCT With Three-Year Follow-Up of Peer Support Groups for Chinese Families of Persons With SchizophreniaWai Tong Chien, Ph.D., B.N., and David R. Thompson, Ph.D., M.Sc.1 October 2013 | Psychiatric Services, Vol. 64, No. 10The Mindfulness-Based Psychoeducation Program for Chinese Patients With SchizophreniaWai Tong Chien, Ph.D., B.N., and Isabella Y. M. Lee, M.Phil., B.N.1 April 2013 | Psychiatric Services, Vol. 64, No. 4The Influence of Perceived Social Support on Medication Adherence in First-Episode Psychosis1 January 2013 | The Canadian Journal of Psychiatry, Vol. 58, No. 1International Review of Psychiatry, Vol. 24, No. 2 Volume 61Issue 3 March, 2010Pages 317-320PSYCHIATRIC SERVICES March 2010 Volume 61 Number 3 Metrics PDF download History Published online 1 March 2010 Published in print 1 March 2010
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