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Still Infantilizing Autism? An Update and Extension of Stevenson et al. (2011)

2022; Mary Ann Liebert, Inc.; Volume: 4; Issue: 3 Linguagem: Inglês

10.1089/aut.2022.0014

2573-959X

Nameera Akhtar, Janette Dinishak, Jennifer L. Frymiare,

Family and Disability Support Research

Background: Stevenson et al. (2011) examined photographs and language used to represent autism on chapter websites for the Autism Society of America, autism charity websites, movies, television shows, fictional books, and U.S. new stories and found that they overwhelmingly used children to represent autism. Methods: Using Stevenson et al.'s methods, we tested the hypothesis that, a decade on, these same sources would now include more representations of autistic adults. We statistically compared our findings with theirs. Results: On the chapter websites of the Autism Society of America and in fictional books, the hypothesis was supported in that there were more representations of adults (19%–20%) than in the original study (5%–9%), but there were still far more representations of children than of adults. In movies, television shows, and U.S. news stories, there were equal numbers of representations of autistic adults and autistic children. Conclusions: These findings suggest a move away from infantilizing autism in some domains, but they rely on a narrow construal of "infantilizing": the underrepresentation of autistic adults in media. However, even when autistic adults are represented, they may still be infantilized in various ways. Future research will need to examine the impact of infantilizing media on both autistic and non-autistic people, and other ways in which these representations are limited (e.g., gender and race/ethnicity). A prior study showed that most representations of autistic people in the United States portray children. It is important that the public not perceive autism as a disability that only affects children. If autistic adults are not adequately represented, they and their needs become invisible. We wanted to see if representations of autistic adults in the United States have increased in the decade since the original study was published. We counted the numbers of representations of autistic adults and autistic children on the chapter websites of the Autism Society of America, autism charity websites, in fictional books, movies, and television shows with autistic characters, and in U.S. news stories that mentioned autistic people. We then compared these numbers with the numbers from the original study. On the chapter websites of the Autism Society of America and in fictional books, there were more representations of adults than in the original study, but there were still far more representations of children than of adults. In movies and television shows, as well as U.S. news stories, the number of representations of autistic adults was equal to those of children. These findings show that there has been some progress in increased representations of autistic adults in the United States. Our study cannot tell us what exactly has contributed to this change, but we speculate that the rise of autistic self-advocacy is the most likely candidate, as it has trickle-down effects such as hiring of autism consultants for movies and television shows and journalists' increased use of autistic self-advocates as sources. Our analyses, as in the original study, are limited to depictions of autism in the United States and examine only one aspect of representation (age). Gender, race/ethnicity, and other dimensions of autistic representations need to be examined in future research. Knowing about representation of autistic adults is important because of the many potential benefits of accurate representation, such as access to accommodations and resources beyond childhood (e.g., jobs, healthcare). Positive media representations may also help reduce stigma and stereotypes.