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Symptom Burden Is Lower in Asian and Pacific Islander and Black Men Admitted to Home-Based Palliative Care in an Integrated Health Care System

2022; Mary Ann Liebert, Inc.; Volume: 25; Issue: 10 Linguagem: Inglês

10.1089/jpm.2021.0528

1096-6218

Emily Rozema, Eric C. Haupt, Jeffrey Mariano, Huong Q. Nguyen, Ernest Shen, Brian S. Mittman, Susan Wang, Ari Padilla, Mayra Macias, Janet Lee, Thearis A. Osuji, Kathleen Estrada, Rebecca Biddle, Byron Batz, Jasamin Disney, T. Martı́nez, Rose Roxas, Peter Khang, Dan Huynh, Mary Machado, Gina Andres, Ángel Vargas, Richard A. Mularski, Carmit K. McMullen, Britta Torgrimson-Ojerio, Madeline Peyton, John Brandes, E. Schield, P.A. Ramey, Chris Carlson, Paula J. Edwards, Vicki Krepps, Jennifer Black, Erin Bruner, Mary Ann McBurnie, Ning Smith, Suzanne M. Gillespie, Kim Funkhouser, Morgan J. Fuoco, Dea Papajorgji‐Taylor, Phil Crawford, Kelly Kirk, Joe Cerizo, Kimberly Stewart, Daniel Vaughn, Meagan Shaw, Katie Vaughn, Joanne Lynn, Lynn F. Reinke, Charles Anderson, Summer Austin-Bowden, David Baker, Bill Clark, Janet M. Corrigan, Jennie Chin Hansen, Maureen Henry, K. H. Luke, Thomas Lee, Carol Levine, Kristine Maberry, Diane E. Meier, Carol Joy Phillips, Sarah Hudson Scholle, June Simmons, Judy Thomas, Henry Werch, Peter Ganz, Mary D. Naylor, Soo Borson, Kevin C. Cain,

Family Support in Illness

Background: Little is known about racial/ethnic differences in symptom severity among patients receiving home-based palliative care (HomePal). Objectives: To determine whether symptom severity differs between White patients and patients of color receiving HomePal and whether gender moderates the difference. Design: This is a cross-sectional exploratory study. Setting/Subjects: Baseline data were from 2090 patients receiving HomePal in Kaiser Permanente Southern California. Measurements: Multivariable median regression analyses were carried out across race/ethnicity groups and stratified by gender to assess differences in Edmonton Symptom Assessment System (ESAS) scores at HomePal admission. Results: Asian/Pacific Islander men and Black men had lower ESAS scores compared than White men (−5 [−7.8, −2.2], p = 0.0005 and −5.4 [−8.7, −2.1], p = 0.001, respectively); there were marginal ESAS differences across race/ethnic groups for women. Conclusion: Patients of color reported lower symptom severity than White patients. More research is needed to understand how the intersection of culture and gender affects symptom experience and reporting in patients living with serious illness. Trial Registration: ClinicalTrials.gov: NCT#03694431.